摘要
目的 探讨颈动脉体瘤(CBT)患者自确诊至术后康复的患病体验和症状负担,以期为医务人员对CBT患者不同患病阶段进行针对性管理提供实证支持。方法 采用纵向质性研究方法,通过目的抽样法选择2022年12月至2023年12月中国医学科学院北京协和医院收治的12例CBT患者进行半结构化访谈,并对资料进行横断面和纵向分析。结果 共提炼出4个主题和13个亚主题:患病体验(求医诊治经历曲折、破坏与应激、自我接纳与调适);症状负担生理层面(呛咳、分泌物增多,睡眠紊乱,嗓音改变,吞咽功能受损,面部表情肌受损);症状负担心理层面(病耻感、对颅神经损伤症状康复的不确定感);疾病获益感体验(实施促进健康行为、新的规划、调整人生重心和目标)。结论 CBT患者的患病体验和症状负担并非一成不变,医护人员应及时、动态评估患者的症状体验和心理感受,针对性实施干预,提高患者的生存质量。
Objective To explore the illness experience and symptom burden of patients with carotid body tumor(CBT)from diagnosis through postoperative recovery,in order to provide empirical support for targeted management of CBT patients by medical staff at different disease stages.Method A longitudinal qualitative research method was adopted,a total of 12 CBT patients admitted to Peking Union Medical College Hospital,Chinese Academy of Medical Sciences from December 2022 to December 2023 were selected through purposive sampling for semistructured interviews,cross-sectional and longitudinal analyses were conducted on the data.Result The analysis yielded 4 themes and 13 sub-themes:illness experience(tortuous journey to diagnosis,destruction and stress,selfacceptance and adjustment);physiological symptom burden(irritating cough,increased secretions,sleep disorders,voice changes,impaired swallowing function,damage to facial expression muscles);psychological symptom burden(stigma,uncertainty regarding recovery from cranial nerve injury symptoms);positive illness experience(adoption of health-promoting behaviors,making new plans,adjusting life priorities and goals).Conclusion The illness experience and symptom burden of CBT patients are dynamic.Medical staff should conduct timely and dynamic assessments of patients'symptom experience and psychological states,implement targeted interventions,and improve patient quality of life.
作者
梁和静
王钰
郭明华
杨春旭
王欢
顾光超
曾嵘
王磊
郑月宏
Liang Hejing;Wang Yu;Guo Minghua;Yang Chunxu;Wang Huan;Gu Guangchao;Zeng Rong;Wang Lei;Zheng Yuehong(Department of Vascular Surgery,Peking Union Medical College Hospital,Chinese Academy of Medical Sciences,Beijing 100730,China)
出处
《血管与腔内血管外科杂志》
2025年第9期1153-1157,1210,共6页
Journal of Vascular and Endovascular Surgery
基金
中央高水平医院临床科研专项(2022-PUMCH-B-100)。
关键词
颈动脉体瘤
质性访谈
纵向研究
颅神经损伤
患病体验
症状负担
carotid body tumor
qualitative interview
longitudinal study
cranial nerve injury
illness experience
symptom burden
