摘要
目的:分析2022年江西省罕见病治疗费用及其影响因素,为完善罕见病防治策略提供参考。方法:基于SHA2011理论和方法,核算分析2022年江西省罕见病治疗费用,采用K-Means聚类和支持向量机模型分析罕见病住院费用的影响因素。结果:2022年江西省罕见病治疗费用6 711.82万元,机构流向以综合医院、省级医院为主,患者分布以55~59岁和20岁以下年龄组为主,神经系统疾病所占费用最高,影响罕见病住院费用的最主要因素是实际住院天数和药占比。结论:加强罕见病药品研发与药品供应保障,优化老年、儿童及重点病种的罕见病治疗策略,提高基层罕见病诊疗能力,确保罕见病患者能够得到及时、有效的治疗。
Objective To analyze the cost of rare disease treatment and its influencing factors in Jiangxi Province in 2022,and to provide reference for improving the strategy of rare disease prevention and treatment.Methods Based on the theory and method of SHA2011,the treatment cost of rare diseases in Jiangxi Province in 2022 was analyzed,and the influencing factors of hospitalization cost of rare diseases were analyzed by K-Means clustering and support vector machine model.Results In 2022,the treatment cost of rare diseases in Jiangxi Province was 67.118 2 million yuan.the institutional flow was mainly in general hospitals and provincial hospitals,the distribution of patients was mainly in the age groups of 55-59 years old and under 20 years old,and neurological diseases accounted for the highest cost,and the most important factors affecting the cost of hospitalization for rare diseases were the actual hospitalization days and the proportion of drugs.Conclusion It is necessary to strengthen the research and development of rare disease drugs and drug supply guarantee,optimize the treatment strategy of rare disease for the elderly,children and key diseases,and improve the diagnosis and treatment capacity of rare disease at primary level,so as to ensure that patients with rare disease can receive timely and effective treatment.
作者
刘慧玲
赵恒伯
谢志勤
吴海波
LIU Huiling;ZHAO Hengbo;XIE Zhiqin;WU Haibo(School of Economics and Management,Jiangxi University of Chinese Medicine,Nanchang Jiangxi 330004,China;不详)
基金
江西省自然科学基金管理科学类项目(20212BAA10004)
江西中医药大学研究生科研训练计划资助(2024jzzdxkx031)
2024年江西中医药大学“大学生创新创业训练计划”项目(XJ-S202424)。
关键词
罕见病
治疗费用
卫生费用核算体系2011
江西省
rare diseases
treatment cost
health cost accounting system 201l
Jiangxi Province
