摘要
目的探讨Wilson病(Wilson's disease,WD)患者家属的生活质量状况及其相关影响因素。方法采用自编的一般情况问卷、简明健康状况调查表(SF-36)以及社会支持问卷对75例WD患者家属的生活质量进行研究,运用SPSS 13.0软件进行Logistic回归分析探讨患者家属的SF-36各维度得分与一般情况问卷、社会支持量表分的相关性。结果 WD患者家属SF-36各维度除生理职能、一般健康状况外均低于正常人群(P<0.05、P<0.01)。家属性别与生理功能得分呈负相关、与精力得分呈正相关(P<0.05),生理职能、情感职能与患者性别呈负相关(P<0.05、P<0.01),躯体疼痛与患者临床类型、家属年龄呈正相关(P<0.05),一般健康状况、精力得分与客观支持得分呈正相关(P<0.05、P<0.01),社会功能与文化程度呈正相关(P<0.05),情感职能、精神健康得分与社会支持总分呈正相关(P<0.05、P<0.01)。结论 WD患者家属的生活质量较正常人群相对较低,且与家属的年龄、性别、文化程度、社会支持及患者的性别、临床类型密切相关,临床上宜制定有针对性的护理方案以进一步提高患者及家属的生活质量。
Objective To probe into related factors of quality of life in family members of patients with Wilson＇s disease（WD）. Methods Questionnaires were conducted with general conditions,Short Form 36 Health Survey Questionnair（ SF -36） and Social Sup- porting Rating Scale（SSRS）. Logistic regression analysis was used to analyze the associativity of factor scores in SF -36 and general con- ditions,SSRS of 75 family members of WD patients using SPSS 13.0 software. Results Analysis showed the factor scores in SF - 36 ex- cept role -physical,general health were lower than those in normal population （P 〈 O. 05, P 〈 0.01 ）. Negative correlation was observed between sexes of family members and physical functioning（ P 〈 0.05 ） ,between role -physical,role -emotional and sexes of patients（P 〈 0.05 ）. There was positive correlation between sexes of family members and vitality（ P 〈 0.05, between bodily pain and clinical types, ages of the family members （ P 〈 0.05 ） , between general health, vitality and objective support （ P 〈 O. 05, P 〈 0. O1 ） , between social functioning and education level（ P 〈 0. 05 ） , between the scores of social support sum and role - emotional, mental health （ P 〈 0.05, P 〈 0. 01 ）. Conclusion The family members have poor life quality and significantly corelated with ages,sexes,education level,social support of the family members and clinical types of WD patients. We should design the targeted care program and further improve the quality of life in family members and patients.
出处
《医学研究杂志》
2014年第5期72-76,共5页
Journal of Medical Research
基金
安徽省卫生厅科研基金资助项目(2012zy65)
关键词
WILSON病
肝豆状核变性
患者家属
生活质量
相关因素
Wilson＇s disease
Hepatolenticular degeneration
Family members of patients
Quality of life
Related factors
