摘要
目的探讨孤独症儿童的家庭环境以及父母生存质量现况,为改善其家庭环境提供依据。方法采用家庭环境量表中文版(FES-CV),对47例孤独症患儿和47例正常儿童进行家庭环境的病例对照研究,主要评价家庭环境中的亲密度、情感表达、矛盾性、知识性、娱乐性5个因子。采用WHO生存质量简表(WHOQOL-BREF),进行父母生存质量调查。内容包括生理领域、心理领域、社会关系领域、环境领域4个方面。结果孤独症儿童家庭环境的亲密度、知识性、娱乐性3个因子得分均明显低于正常儿童家庭,而矛盾性因子得分高于正常儿童家庭。孤独症儿童父母的生存质量在生理、心理、社会关系、环境4个领域中都明显低于正常组父母。结论孤独症儿童的家庭环境、父母生存质量受到了明显的影响,应进一步完善孤独症康复服务体系,为患儿及其家庭成员提供更多的支持和帮助。
Objective To understand the status of family environment of autistic children and their parents quality of life, and to provide bases for improving their family environment. Methods The parents of 47 autistic children and 47 normal children were recruited to take part in the investigation. FESCV, was mainly used to evaluate familiarity, emotional expression, contradictoriness, knowledge and entertainment, was used. WHOQOL- BREF, which included the domains of physiology, psychology, social relation and environment, also was used. Results Comparing with scores of normal children, the scores of familarity, knowledge, entertainment of autistic children＇s parents were significantly lower, but the score of contradictoriness was significantly higher. Comparing with the quality of life of normal children g parents, the physiology, psychology, social relation and environment of autistic children＇s parents were significantly lower. Conclusion Autism children＇s familial environment and parents quality of life are obviously affected. More supports should be given to autism children and their family members.
出处
《中国学校卫生》
CAS
北大核心
2010年第2期136-137,140,共3页
Chinese Journal of School Health
关键词
孤独性障碍
家庭特征
生活质量
精神卫生
儿童
Autistic disorder
Family characteristics
Quality of life
Mental health
Child
