摘要
目的分析国内外孤独症谱系障碍(ASD)患儿生活质量的评估工具,为医护人员选择及修订适合我国ASD患儿生活质量的评估工具提供依据。方法采用范围综述的研究方法,系统检索PubMed、Embase、Web of Science、Cochrane Library、中国知网、万方数据库、中国生物医学文献数据库、维普网收录的ASD患儿生活质量评估工具相关文献。检索时限为建库至2025年3月12日。筛选符合纳入标准的文献,提取文献中评估工具的基本信息,将检索结果进行规范化报告。结果共检索到3905篇文献,最终纳入29篇文献,包括11个ASD患儿生活质量评估量表,其中2个评估工具为针对ASD患儿特点开发。结论ASD患儿生活质量评估工具种类较多,总体信效度水平良好,但我国尚未开发标准化的本土量表。未来应对现有ASD患儿生活质量评估工具进行汉化和完善,开发研制本土化的评估工具。
Objective:To analyze the assessment tools for quality of life of children with autism spectrum disorder(ASD)at home and abroad,so as to provide a basis for healthcare professionals to select and revise the assessment tools suitable for the quality of life of children with ASD in China.Methods:A scoping review method was used to systematically search the literature on quality of life assessment tools for children with ASD included in PubMed,Embase,Web of Science,Cochrane Library,China National Knowledge Infrastructure,Wanfang Data,China Biology Medicine disc and VIP.The search period was from the establishment of the database to March 12,2025.Literature that met the inclusion criteria was screened,basic information about the assessment tools was extracted,and the search results were reported in a normalized manner.Results:A total of 3905 articles were retrieved and 29 articles were finally included.Eleven quality of life assessment scales for children with ASD were included,including two scales developed to characterize children with ASD.Conclusions:There is a wide variety of quality of life assessment tools for children with ASD,with good overall reliability and validity,but no standardized indigenous scales are developed in China.Existing quality of life assessment tools for children with ASD should be sinicized and improved,and localized assessment tools should be developed.
作者
张奕嘉
段红梅
刘红霞
岳树锦
于鑫淼
韩竹凤
张淑萍
Zhang Yijia;Duan Hongmei;Liu Hongxia;Yue Shujin;Yu Xinmiao;Han Zhufeng;Zhang Shuping(School of Nursing,Bejing University of Chinese Medicine,Beijing 100029,China)
出处
《中华现代护理杂志》
2025年第24期3258-3265,共8页
Chinese Journal of Modern Nursing
基金
国家心理健康和精神卫生防治中心中国信息通信研究院"数心融合"专项课题。
关键词
儿童
孤独症
生活质量
评估工具
范围综述
Children
Autism spectrum disorder
Quality of life
Assessment tools
Scoping review
