摘要
目的探讨重症哮喘对患儿自身生存质量及其家庭的影响,为哮喘患儿临床健康教育提供依据。方法分别应用儿科哮喘生命质量评分表(PAQLQ)及儿童生存质量体系表(PedsQLTM)中的家庭影响模块对该院就诊不同程度哮喘发作期患儿生存质量及家庭状况进行问卷调查,分析重度哮喘对患儿及其家庭的影响。结果重度哮喘患儿PAQLQ总分及各维度得分显著低于轻、中度患儿,两两比较有统计学意义(P<0.05)。重度哮喘患儿对父母日常生活、工作情况的影响程度高于轻、中度哮喘患儿,差异有统计学意义(P<0.05)。经PedsQLTM家庭影响模块量表分析可知,重度哮喘患儿父母生存质量及家庭功能评分显著低于轻、中度患儿,两两比较有统计学意义(P<0.05)。重度哮喘患儿中忧虑维度在父母生存质量中评分最低,经济负担在家庭功能中评分最低。结论医护人员应重视哮喘患儿及其家长的心理状况对病情及治疗的影响,从而多方位提高患儿及其家人生存质量。
Objective To investigate the effect of severe asthma on children themselves and their families to provide evidence of clinical health education. Methods The levels of quality of life of asthma children and family status were analyzed with application of pediatric asthma quality of life score sheet（ PAQLQ） and child survival quality system table（ PedsQLTM）. Results The total score and the scores of PAQLQ of severe asthma were lower than those of mild to moderate patients,and pairwise comparisons showed statistically significant differences（ P ＆lt; 0. 05）. The impact of severe asthma on parents daily life,work was higher than the impact of mild to moderate asthma（ P ＆lt; 0. 05）. The quality of life and family function scores of severe asthma were significantly lower than those of mild to moderate patients,and pairwise comparisons showed statistically significant differences（ P ＆lt; 0. 05）. The scores of anxiety dimension in the quality of life in the parents of severe asthma children were the lowest,and the scores of the economic burden in the family function were the lowest. Conclusion Health care in children with asthma and their parents should pay attention to the psychological status of the disease and treatment effects,thereby improving multi-faceted quality of life of patients and their families.
出处
《安徽医药》
CAS
2014年第2期308-310,共3页
Anhui Medical and Pharmaceutical Journal
关键词
重症哮喘
生存质量
家庭功能
severe asthma
quality of life
family function
