摘要
结合我国遗传服务和出生缺陷干预的情况,分析了减少出生缺陷的必要性和婚前、孕前、产前的遗传咨询、筛查、检测服务在出生缺陷干预中的重要意义。针对我国目前遗传服务中存在的问题,认为应重视出生缺陷干预的相关伦理社会问题,即应提高分配公义和初级预防的普及度;倡导遗传咨询的非指令性和对个人的尊重;做好遗传信息的保密工作;尊重个人自主权和减轻生育的压力。
This paper analyzed the necessity of reducing birth defects and the values of genetic counseling before marriage, pregnancy and birth, screening, testing services in the birth defects intervention by combining our country genetic services and birth defects intervention. According to the problems existing in the genetic service in our country, this paper proposed that should pay attention to birth defects intervention of relevant ethical social problems, namely should improve the allocation of righteousness and the popularity of primary prevention; advocate for no tough genetic counseling and respect for the individual; do well in genetic information confidential; respect for individual autonomy and ease the pressure on fertility.
出处
《中国医学伦理学》
2013年第2期252-254,共3页
Chinese Medical Ethics
关键词
出生缺陷
遗传服务
出生缺陷干预
遗传检测
尊重自主权
Birth Defects
Genetic Services
Birth Defects Intervention
Genetic Testing
Respect for Autonomy
