摘要
对遗传咨询的定义作了界定,介绍了遗传咨询的发展以及目前实践概况,提出遗传咨询应当遵守尊重个人和家庭,保护家庭完整;信息的完全告知;遗传信息的保密和适当公开;非指令性咨询等伦理原则。同时结合我国遗传咨询实践的现状,探讨了我国目前遗传咨询中涉及和存在的伦理问题:对遗传咨询的定位和认识存在偏差,对个人人格、隐私的尊重和遗传性信息的保密不到位,遗传性咨询中的知情同意落实不到位,对咨询的非指令性理解和重视程度不够等。针对没有专业的遗传咨询师和专门的咨询机构的现状,提出解决遗传咨询现实难题的相关建议:加强对临床遗传服务的重视,提高医师的伦理意识,尊重患者和保护患者个人信息,努力做好告知义务并尊重患者选择,加强对遗传咨询的专业性教育。
This paper defined the genetic counseling, introduced its development and the current practices and proposed some ethical principles, such as respecting individual and family, protecting the family completeness; completely informed consent; the confidentiality of genetic information and appropriate publication ; non - prescriptive consulting and so forth. Based on the current condition, some relevant ethical issues were discussed： there is a deviation in the cognition of genetic counseling; imperfection in respecting the individual personality, privacy and the confidentiality of the genetic information ; informed consent was not fully carried out ; pay less attention to non - prescriptive consulting and lack of comprehensive understanding. Now, there is no professional s and institution, to solve those problems, the author proposed that： attach importance to clinical genetic service, improve ethics con- sciousness of doctors, show respect and protect the patient＇s individual information, make effort in informed consent and respect patient＇s decision, strengthen the professional education on genetic counseling.
出处
《中国医学伦理学》
2012年第2期154-156,共3页
Chinese Medical Ethics
关键词
遗传咨询
遗传信息
伦理准则
遗传咨询师
知情同意
Genetic Counseling
Genetic Information
Ethical Principle
Genetic Consultant
Informed Consent
