摘要
目的了解新生儿家长对遗传代谢病筛查相关知识的认知情况,为以后的健康教育提供依据。方法采用分层整群抽样方法,以城乡分层,以医院为单位整群选取2011年5月1日至7月31日出生新生儿家长共2170名作为研究对象,采用自编的调查问卷对家长进行认知情况调查。结果筛查组在问卷总分、疾病性质、疾病影响、实验灵敏度,以及筛查结果查询等题得分均数高于未筛查组,除先天性甲状腺功能减低症、先天性肾上腺皮质增多症的疾病性质及苯丙酮尿症主要影响3题外,其余题目两组得分差异均有统计学意义。问卷总得分及格率为12.7%,每题正确率>50%的只有实验灵敏度、结果查询及可疑阳性3个题项。结论合肥市新生儿家长对代谢病筛查知识了解水平较低,相关部门需要制定有效的健康教育方案,改进健康教育策略,提高家长代谢病筛查相关知识。
Objective The aim of this study was to analysis the cognition of genetic metabolic disease screening knowledge among newborn parents , and to provide basis for follow-up health education. Methods A total of 2170 parents whose baby was born on May 1 to July 31of 2011 were recruited form different levels hospitals by stratified-cluster sampling method in Hefei. They completed the self-rating scale of disease screening knowledge. Results The mean of screening group score was higher than non-screening group on the total questionnaire, nature of disease, affect of disease, experimental sensitivity, inquiry of screening result , and the scores differences were statistically significant except nature of Congenital hypothyroidism reduce disease and Congenital adrenal histiocytosis and the affect of Phenylketonuria. The passing rate of total questionnaire was 12.7%. Only experimental sensitivity, inquiry of screening result and suspected positive correct rate was higher than 50%. Conclusions The level of newborn parents ＇ cognition knowledge about genetic metabolic disease screening was low in Hefei, and it is important to develop effective heath education programs and to improve heath education strategy to raise parents＂ genetic metabolic disease screening knowledge.
出处
《中国妇幼卫生杂志》
2012年第3期162-165,共4页
Chinese Journal of Women and Children Health
关键词
新生儿
疾病筛查
认知
调查
Newborn
Disease Screening
Cognition
Survey
