摘要
经过40多年的实践,欧美国家血友病患者接受血友病治疗中心提供的综合关怀,明显改善血友病患者人均寿命及提高其生活质量。中国的血友病综合关怀及家庭治疗与护理起步晚,目前主要在国内大的血友病中心开展,在患者的生活质量提高方面显示了较大作用,但仍存在很多问题。儿童血友病的家庭治疗与护理可改善患儿生存质量,节约医疗费用,各地血友病管理中心需加强儿童血友病的家庭治疗与护理工作。
We reviewed some relevant literatures at home and abroad in recent years, and summarized the developmental sta- tus of family therapy and nursing care of children with hemo- philia.During more than 40 years of practice, their life expec- tancy and their quality of life have significantly been improved after the hemophilia patients received treatment from the He- mophilia Treatment Center in Europe and the United States. Comprehensive hemophilia care and family therapy and care started late in China, and large domestic Hemophilia Centers played greater roles in improvement of the life quality of the patients, but there were still many problems. Family therapy and nursing care can improve the quality of life of children with hemophilia, and save the cost of health care. Family therapy and nursing care for children with hemophilia should be strengthened in Hemophilia Treatment Centers.
出处
《中国实用儿科杂志》
CSCD
北大核心
2017年第1期44-47,共4页
Chinese Journal of Practical Pediatrics
关键词
儿童
血友病
家庭治疗
家庭护理
综合关怀
生存质量
child
hemophilia
family therapy
family nursing
comprehensive care
quality of life
