摘要
通过对电子健康信息交换中可能带来的医学伦理问题进行探讨和研究,以期对正确行使和把握好患者知情同意权的问题有所启迪和帮助。在指出电子健康信息交换可能带来诸如侵犯患者隐私权、提供信息的患者得不到任何报酬等医学伦理方面问题的同时,也分析了由于不考虑电子健康信息交换目的和意义的特殊性而过分强调患者知情同意权所带来的不利后果。结果表明,在电子健康信息交换中行使患者的知情同意权应有别于介入性研究活动和对患者的治疗过程,与使用所带来的公共利益相比,信息提供者的利益损失较小。从个体权利与公共利益平衡的角度看,应该采取合理措施保护患者的隐私权,这样在使用患者的健康信息才有可能更符合医疗伦理道德。
The purpose of this article is to analyze bioethical issues resulting from the application of health information record and help to provide conceptual implications and find solutions with regard to respecting patients＂ rights of informed consent in this regard. An approach is applied to indicate that the benefits of the research should not be compromised even though there are concerns over the violation of patients＂ privacy and lack of opportunities for patients to share profits of the research. It comes up with a point that patients, without being granted with the rights of informed consent, suffer less harms in record - based research than they would do in interventional re- search or medical treatment while the record - based research may cause enormous benefits to the public. Conse- quently, a conclusion is reached that it is bioethically correct to strike a balance between the personal rights and social benefits by applying patients＇health information data to biomedical research without violating their privacy.
出处
《中国医学伦理学》
2013年第2期172-173,共2页
Chinese Medical Ethics
基金
空军总医院重点课题
课程名称:"飞行员病案及疾病检索数据库集成系统"
课题编号:KZ2009024
关键词
健康信息
电子病历
知情同意权
隐私权
社会公共利益
医疗伦理道德
Health Information
Electronic Medical Record
Informed Consent
Right of Privacy
Public Interests
Medical Ethics
