摘要
目的编制中国癌症患者化学生物治疗生活质量量表（ＱＬＱ－ＣＣＣ），探讨癌症患者生活质量（ＱＯＬ）量表编制过程中的一些方法学问题。方法１９９３年４月～１９９５年４月在接受化学生物治疗的中国癌症患者中，主要按照癌症患者ＱＯＬ量表编制的Ｒｏｌｓ－Ｒｏｙｃｅ模式，通过指标的选择、筛选获得３０个指标，经量表格式编排、预测试等程序最后确定的３５个问题构成ＱＬＱ－ＣＣＣ。结果ＱＬＱ－ＣＣＣ主要涉及患者５个方面：躯体方面１６个指标，包括７个与疾病（癌症）及其治疗无关的指标、９个与疾病（癌症）及其治疗有关的指标；精神及心理方面５个指标；社会方面５个指标；其他方面（总体主观感觉方面）９个指标，他们共同构成患者的生活质量。结论ＱＯＬ研究是一个新的、发展迅速的重要课题。临床ＱＯＬ研究主要通过ＱＯＬ量表的编制、实施及测评而得以实现。在引进参照国外有关ＱＯＬ问卷（量表）的同时，编制、评估我国自己的ＱＯＬ问卷，将有助于我国在这一领域中的研究工作，以推动中国癌症生活质量研究进程。
Objective To develop the quality of life questionnaire for Chinese cancer patients receiving chemobiotherapy (QLQ CCC), and to study the methodology involved in the construction of scales measuring quality of life of cancer patients. Methods From April, 1993 to April, 1995, QLQ CCC had been developed mainly according to the Rolls Royce model: 30 items were iuitially identified and tested in advance, from which the “best” items were selected to from the final format of QLQ CCC (the fourth generation questionnaire) including 35 questions.Results QLQ CCC had 35 items mainly concerning the five different aspects of cancer patients. Physical aspect included 16 items, of which 9 were disease/treatment related (specific items), and 7 non specific items. Psychological/spiritual, social and general health aspects had 5, 5 and 9 items, respectively. Conclusion Quality of life (QOL) research in cancer patients is conducted primarily through the development, implementation and assessment of QOL scales. QOL scales adopted in the developed countries, owing to difference in sociocultural background, have to be modified according to China′s concrete condition. This study is an attempt to set up our own QOL scales for cancer patients.
出处
《中华肿瘤杂志》
CAS
CSCD
北大核心
1997年第6期437-441,共5页
Chinese Journal of Oncology
