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健康医疗大数据共享关键问题及对策 被引量:42
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作者 石晶金 于广军 《中国卫生资源》 北大核心 2021年第3期223-227,237,共6页
从数据共享的概念和分类出发,归纳我国健康医疗大数据共享现状和关键问题。由于法律法规、管理制度和技术标准的缺失,我国健康医疗大数据共享模式面临共享效率不高、共享范围有限、数据冗余分散、系统重复建设等多方面挑战。借鉴国内外... 从数据共享的概念和分类出发,归纳我国健康医疗大数据共享现状和关键问题。由于法律法规、管理制度和技术标准的缺失,我国健康医疗大数据共享模式面临共享效率不高、共享范围有限、数据冗余分散、系统重复建设等多方面挑战。借鉴国内外健康医疗大数据共享的建设经验,提出完善法律法规、兼顾多方利益、注重数据治理、推行通用信息标准等建议。以专病数据库建设为例,阐明健康医疗数据共享对改善医疗质量和临床科研的重要意义,以期为医疗机构的数据共享建设提供参考。 展开更多
关键词 健康医疗大数据health big data 数据共享data sharing 信息化建设informatization construction 数据治理data governance 专病数据库special disease database
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Delayed physical growth and related factors in pediatric patients with transfusion-dependent thalassemia
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作者 KUANG Zhexiang 《China Medical Abstracts(Internal Medicine)》 2025年第3期186-187,共2页
Objective To investigate the physical growth status of pediatric patients with transfusion-dependent thalassemia(TDT)and analyze the effects of treatmentrelated and socioeconomic factors on physical growth.Methods Bas... Objective To investigate the physical growth status of pediatric patients with transfusion-dependent thalassemia(TDT)and analyze the effects of treatmentrelated and socioeconomic factors on physical growth.Methods Based on the specialized thalassemia database from gene therapy clinical research at the Institute of Hematology&Hospital of Blood Diseases,Chinese Academy of Medical Sciences&Peking Union Medical College,we collected data on height and weight development,familyy economic status,and medical records of 338 pediatric patients with TDT from October 2023 to May 2024. 展开更多
关键词 socioeconomic factors pediatric patients physical growth specialized thalassemia database transfusion dependent thalassemia gene therapy clinical research investigate physical growth status medical records
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