目的评估注意缺陷多动障碍(ADHD)儿童的生存质量。方法采用横断面病例对照研究设计。病例组为73例ADHD儿童(ADHD组),正常对照组(对照组)为与ADHD组性别、年龄匹配的98例正常儿童。使用儿科生存质量测定量表(pediatric quality of life i...目的评估注意缺陷多动障碍(ADHD)儿童的生存质量。方法采用横断面病例对照研究设计。病例组为73例ADHD儿童(ADHD组),正常对照组(对照组)为与ADHD组性别、年龄匹配的98例正常儿童。使用儿科生存质量测定量表(pediatric quality of life inventoryTM version 4.0,PedsQLTM 4.0)中文版普适性核心量表、Conners父母问卷对儿童及其父母评估。结果调查的171个家庭中169个家庭完成问卷,应答率98.8%。ADHD儿童PedsQLTM 4.0中文版儿童评分总分(72.7±13.0)比对照组(83.7±12.0)低(t=-49.3,P=0.000),父母报告评分总分(70.0±12.4)比对照组(82.4±11.2)低(t=-57.7,P=0.000)。ADHD儿童心理领域分(儿童评分68.6±14.5,父母报告评分64.9±15.4)比生理领域分(儿童评分81.2±14.0,父母报告评分81.7±15.6)低(t=3.79、6.88,P=0.000)。ADHD儿童Conners父母问卷总分(44.54±17.89)高于对照组(16.09±9.23)(t=100.08,P=0.000)。ADHD儿童PedsQLTM 4.0中文版角色功能儿童自评评分与Conners父母问卷学习问题、多动指数、总分呈负相关(r=-0.650、-0.630、-0.599,P=0.000)。结论ADHD儿童生存质量较正常儿童差,品行、学习、冲动控制等问题与之有关。展开更多
Background: Health related quality of life (HRQOL) has become a field of extensive research involving children and adolescents with diabetes. There are no HRQOL instruments designed or adapted for the Arabic culture a...Background: Health related quality of life (HRQOL) has become a field of extensive research involving children and adolescents with diabetes. There are no HRQOL instruments designed or adapted for the Arabic culture and language. The objectives of the study are to test the Arabic translated version of the PedsQLTM 4.0 Generic Core Scales (GCS) and the PedsQLTM 3.0 Diabetes Module (DM) in children and adolescents with type 1 diabetes (T1DM) in Kuwait and analyse their psychometric properties. Methods: After the process of translation, committee review and pre-testing (linguistic validation), 131 children and adolescents with and 104 without T1DM, with their parents completed the Arabic version of GCS. Those with T1DM completed the Arabic DM. Demographic and diabetes-related data were collected using specially designed questionnaires. Internal consistency was checked by Cronbach’s alpha coefficient. The intraclass correlations coefficient, celling and floor effects and construct validity were assessed to determine the psychometric properties of both instruments. Results: Cronbach’s alpha of the child self-report and parent proxy-report was greater than 0.70, for both instruments, indicating internal consistency reliability. Items of both instruments had minimal missing responses, and required a brief time (5 - 7 minutes) to finish indicating their feasibility. No floor effect was demonstrated. Ceiling effect ranged from 5.8% to 15.8%. The GCS distinguished between healthy and diabetic children. The intraclass correlation coefficient (ICC) between child self-report and parent proxy-report of GCS scores showed good to excellent agreement, p < 0.001. However, in the DM reports, the correlation was lower, but still significant. Girls reported lower HRQOL scores in worries and communication subscales of the diabetes module than boys, p < 0.05. Conclusions: The Arabic version of the PedsQL GCS and PedsQL DM showed sufficient feasibility, reliability and validity to be used for research purposes in public health setting for children 2 - 18 years old and their parents.展开更多
文摘目的评估注意缺陷多动障碍(ADHD)儿童的生存质量。方法采用横断面病例对照研究设计。病例组为73例ADHD儿童(ADHD组),正常对照组(对照组)为与ADHD组性别、年龄匹配的98例正常儿童。使用儿科生存质量测定量表(pediatric quality of life inventoryTM version 4.0,PedsQLTM 4.0)中文版普适性核心量表、Conners父母问卷对儿童及其父母评估。结果调查的171个家庭中169个家庭完成问卷,应答率98.8%。ADHD儿童PedsQLTM 4.0中文版儿童评分总分(72.7±13.0)比对照组(83.7±12.0)低(t=-49.3,P=0.000),父母报告评分总分(70.0±12.4)比对照组(82.4±11.2)低(t=-57.7,P=0.000)。ADHD儿童心理领域分(儿童评分68.6±14.5,父母报告评分64.9±15.4)比生理领域分(儿童评分81.2±14.0,父母报告评分81.7±15.6)低(t=3.79、6.88,P=0.000)。ADHD儿童Conners父母问卷总分(44.54±17.89)高于对照组(16.09±9.23)(t=100.08,P=0.000)。ADHD儿童PedsQLTM 4.0中文版角色功能儿童自评评分与Conners父母问卷学习问题、多动指数、总分呈负相关(r=-0.650、-0.630、-0.599,P=0.000)。结论ADHD儿童生存质量较正常儿童差,品行、学习、冲动控制等问题与之有关。
文摘Background: Health related quality of life (HRQOL) has become a field of extensive research involving children and adolescents with diabetes. There are no HRQOL instruments designed or adapted for the Arabic culture and language. The objectives of the study are to test the Arabic translated version of the PedsQLTM 4.0 Generic Core Scales (GCS) and the PedsQLTM 3.0 Diabetes Module (DM) in children and adolescents with type 1 diabetes (T1DM) in Kuwait and analyse their psychometric properties. Methods: After the process of translation, committee review and pre-testing (linguistic validation), 131 children and adolescents with and 104 without T1DM, with their parents completed the Arabic version of GCS. Those with T1DM completed the Arabic DM. Demographic and diabetes-related data were collected using specially designed questionnaires. Internal consistency was checked by Cronbach’s alpha coefficient. The intraclass correlations coefficient, celling and floor effects and construct validity were assessed to determine the psychometric properties of both instruments. Results: Cronbach’s alpha of the child self-report and parent proxy-report was greater than 0.70, for both instruments, indicating internal consistency reliability. Items of both instruments had minimal missing responses, and required a brief time (5 - 7 minutes) to finish indicating their feasibility. No floor effect was demonstrated. Ceiling effect ranged from 5.8% to 15.8%. The GCS distinguished between healthy and diabetic children. The intraclass correlation coefficient (ICC) between child self-report and parent proxy-report of GCS scores showed good to excellent agreement, p < 0.001. However, in the DM reports, the correlation was lower, but still significant. Girls reported lower HRQOL scores in worries and communication subscales of the diabetes module than boys, p < 0.05. Conclusions: The Arabic version of the PedsQL GCS and PedsQL DM showed sufficient feasibility, reliability and validity to be used for research purposes in public health setting for children 2 - 18 years old and their parents.
