AIM: To study the effectiveness of Reitman Centre "Coaching, Advocacy, Respite, Education, Relationship, and Simulation"(CARERS) program, which uses problem-solving techniques and simulation to train informa...AIM: To study the effectiveness of Reitman Centre "Coaching, Advocacy, Respite, Education, Relationship, and Simulation"(CARERS) program, which uses problem-solving techniques and simulation to train informal dementia carers. METHODS: Seventy-three carers for family members with dementia were included in the pilot study. Preand post-intervention data were collected from carers using validated measures of depression, mastery, role captivity and overload, caregiving competence and burden, and coping styles. To assess program effec-tiveness, mean differences for these measures were calculated. One-way ANOVA was used to determine if change in scores is dependent on the respective baseline scores. Clinical effects for measures were expressed as Cohen's D values. RESULTS: Data from 73 carers were analyzed. The majority of these participants were female(79.5%). A total of 69.9% were spouses and 30.1% were children of the care recipient. Participants had an overall mean age of 68.34 ± 12.01 years. About 31.5% of participating carers had a past history of psychiatric illness(e.g., depression), and 34.2% sustained strained relationships with their respective care recipients. Results from carers demonstrated improvement in carers' selfperception of competence(1.26 ± 1.92, P < 0.0001), and significant reduction in emotion-focused coping(measured by the Coping Inventory of Stressful Situations,-2.37 ± 6.73, P < 0.01), Geriatric Depression scale(-0.67 ± 2.63, P < 0.05) and Pearlin's overload scale(-0.55 ± 2.07, P < 0.05), upon completion of the Program. Secondly, it was found that carers with more compromised baseline scores benefited most from the intervention, as they experienced statistically significant improvement in the following constructs: competence, stress-coping style(less emotion-oriented), sense of mastery, burden, overload. CONCLUSION: Study results supported the effectiveness of the CARERS Program in improving caregiving competence, stress coping ability and mental well-being in carers caring for family members with dementia.展开更多
The objective of this study was to clarify the contents of “care that respects individuality” provided to elderly people with dementia living in group homes as perceived by dementia carers qualified. We interviewed ...The objective of this study was to clarify the contents of “care that respects individuality” provided to elderly people with dementia living in group homes as perceived by dementia carers qualified. We interviewed 21 dementia carers qualified working at group homes in Prefecture A about the practical contents of and their thoughts on “care that respects individuality”. The data obtained from the interviews were analyzed using the modified grounded theory approach (M-GTA). As a result, 14 concepts regarding the contents of “care that respects individuality” provided to elderly people with dementia living in group homes as perceived by dementia carers qualified were generated in the following 4 categories: “placing emphasis on the individual”, “respecting feelings”, “eliciting strengths”, and “close mutual relationship”.展开更多
The aim of study was to evaluate knowledge of DFC （dementia-friendly city） in Slovenian population and correlate these findings regarding on status of informal carers of PWD （people with dementia） or noncarers. Qu...The aim of study was to evaluate knowledge of DFC （dementia-friendly city） in Slovenian population and correlate these findings regarding on status of informal carers of PWD （people with dementia） or noncarers. Questionnaire with 5 demographic and 6 dementia knowledge items, and one DFC knowledge item was sent to first 100 email adult users from first author’s adressess list. During June and October 2013 we managed to obtain 57 filled-out by 17 informal carers （29.8%）, and 40 noncarers （70.2%）. Categorical data were compared by chi2 analysis, and p-value 〈 0.05 was considered statistically significant. Differences in responses between informal carers and noncarers are shown in order of significance： （a） in DFC all people know about dementia, understand PWD, and respond with affection and reassurance （64.7% vs. 22.5%; chi2 7.439; p 〈 0.01）; and （b） PWD have opportunity to meet friends and socialize and to take part in singing, walking, and education in DFC （35.3% vs. 7.5%; chi2 4.932; p 〈 0.05）. Efforts to improve public education and to raise awareness on dementia at local and national level should be expanded to boost people in early stages of dementia to be active citizens.展开更多
Background: Dementia, a debilitating condition, requires particular attention in Southern Africa where there is a dearth of prevalence data. Population ageing and other risk factors are driving an increasing incidence...Background: Dementia, a debilitating condition, requires particular attention in Southern Africa where there is a dearth of prevalence data. Population ageing and other risk factors are driving an increasing incidence of dementia. However, limited knowledge and understanding may impact the attitudes and practices towards persons with dementia. Aim: To investigate the relationship between the knowledge of dementia, its effect on the attitudes and practices toward people with dementia in an urban community setting. To determine the perceived availability of services for those with dementia, the awareness of elder abuse and care-giver burden. Methods: A descriptive, cross-sectional study was performed in Khayelitsha. An interviewer administered questionnaire was used with assistance from isiXhosa speaking translators. A sample of 100 individuals was surveyed door-to-door from both the informal and formal housing settlements, using cluster random sampling methods. Results: There was deficient knowledge about dementia, with an average accuracy of 53.44% on the knowledge test. Only 10% reported knowing what dementia was. Participants had generally tolerant views about people with dementia. No significant relationship was found between knowledge and attitudes about dementia. There was a significant difference between people who would share their house with a family member with dementia or send them to nursing homes (p = 0.03). 64% of participants knew what elder abuse was. 19% knew of an elder who had been abused;amongst the most common forms reported were being locked alone in their house and being deprived of food. Conclusions: This study showed that knowledge about dementia was limited with no relationship to attitudes of high tolerance towards people with dementia. Elder abuse was well recognized, but poorly reported. Appropriate health promotion strategies and education should be conducted and further research should be done into dementia in South Africa.展开更多
基金Supported by Social Development Partnerships Program,Human Resources and Skills Development Canada,No.8470775
文摘AIM: To study the effectiveness of Reitman Centre "Coaching, Advocacy, Respite, Education, Relationship, and Simulation"(CARERS) program, which uses problem-solving techniques and simulation to train informal dementia carers. METHODS: Seventy-three carers for family members with dementia were included in the pilot study. Preand post-intervention data were collected from carers using validated measures of depression, mastery, role captivity and overload, caregiving competence and burden, and coping styles. To assess program effec-tiveness, mean differences for these measures were calculated. One-way ANOVA was used to determine if change in scores is dependent on the respective baseline scores. Clinical effects for measures were expressed as Cohen's D values. RESULTS: Data from 73 carers were analyzed. The majority of these participants were female(79.5%). A total of 69.9% were spouses and 30.1% were children of the care recipient. Participants had an overall mean age of 68.34 ± 12.01 years. About 31.5% of participating carers had a past history of psychiatric illness(e.g., depression), and 34.2% sustained strained relationships with their respective care recipients. Results from carers demonstrated improvement in carers' selfperception of competence(1.26 ± 1.92, P < 0.0001), and significant reduction in emotion-focused coping(measured by the Coping Inventory of Stressful Situations,-2.37 ± 6.73, P < 0.01), Geriatric Depression scale(-0.67 ± 2.63, P < 0.05) and Pearlin's overload scale(-0.55 ± 2.07, P < 0.05), upon completion of the Program. Secondly, it was found that carers with more compromised baseline scores benefited most from the intervention, as they experienced statistically significant improvement in the following constructs: competence, stress-coping style(less emotion-oriented), sense of mastery, burden, overload. CONCLUSION: Study results supported the effectiveness of the CARERS Program in improving caregiving competence, stress coping ability and mental well-being in carers caring for family members with dementia.
文摘The objective of this study was to clarify the contents of “care that respects individuality” provided to elderly people with dementia living in group homes as perceived by dementia carers qualified. We interviewed 21 dementia carers qualified working at group homes in Prefecture A about the practical contents of and their thoughts on “care that respects individuality”. The data obtained from the interviews were analyzed using the modified grounded theory approach (M-GTA). As a result, 14 concepts regarding the contents of “care that respects individuality” provided to elderly people with dementia living in group homes as perceived by dementia carers qualified were generated in the following 4 categories: “placing emphasis on the individual”, “respecting feelings”, “eliciting strengths”, and “close mutual relationship”.
文摘The aim of study was to evaluate knowledge of DFC （dementia-friendly city） in Slovenian population and correlate these findings regarding on status of informal carers of PWD （people with dementia） or noncarers. Questionnaire with 5 demographic and 6 dementia knowledge items, and one DFC knowledge item was sent to first 100 email adult users from first author’s adressess list. During June and October 2013 we managed to obtain 57 filled-out by 17 informal carers （29.8%）, and 40 noncarers （70.2%）. Categorical data were compared by chi2 analysis, and p-value 〈 0.05 was considered statistically significant. Differences in responses between informal carers and noncarers are shown in order of significance： （a） in DFC all people know about dementia, understand PWD, and respond with affection and reassurance （64.7% vs. 22.5%; chi2 7.439; p 〈 0.01）; and （b） PWD have opportunity to meet friends and socialize and to take part in singing, walking, and education in DFC （35.3% vs. 7.5%; chi2 4.932; p 〈 0.05）. Efforts to improve public education and to raise awareness on dementia at local and national level should be expanded to boost people in early stages of dementia to be active citizens.
文摘Background: Dementia, a debilitating condition, requires particular attention in Southern Africa where there is a dearth of prevalence data. Population ageing and other risk factors are driving an increasing incidence of dementia. However, limited knowledge and understanding may impact the attitudes and practices towards persons with dementia. Aim: To investigate the relationship between the knowledge of dementia, its effect on the attitudes and practices toward people with dementia in an urban community setting. To determine the perceived availability of services for those with dementia, the awareness of elder abuse and care-giver burden. Methods: A descriptive, cross-sectional study was performed in Khayelitsha. An interviewer administered questionnaire was used with assistance from isiXhosa speaking translators. A sample of 100 individuals was surveyed door-to-door from both the informal and formal housing settlements, using cluster random sampling methods. Results: There was deficient knowledge about dementia, with an average accuracy of 53.44% on the knowledge test. Only 10% reported knowing what dementia was. Participants had generally tolerant views about people with dementia. No significant relationship was found between knowledge and attitudes about dementia. There was a significant difference between people who would share their house with a family member with dementia or send them to nursing homes (p = 0.03). 64% of participants knew what elder abuse was. 19% knew of an elder who had been abused;amongst the most common forms reported were being locked alone in their house and being deprived of food. Conclusions: This study showed that knowledge about dementia was limited with no relationship to attitudes of high tolerance towards people with dementia. Elder abuse was well recognized, but poorly reported. Appropriate health promotion strategies and education should be conducted and further research should be done into dementia in South Africa.
