BACKGROUND Children with critical acute abdominal conditions often undergo intestinal stoma surgery.AIM To explore the impact of a visual mobile terminal-based extended care model on caregiver competence for children ...BACKGROUND Children with critical acute abdominal conditions often undergo intestinal stoma surgery.AIM To explore the impact of a visual mobile terminal-based extended care model on caregiver competence for children with enterostomies.METHODS One hundred twenty children with enterostomies and their caregivers in a children's hospital in Beijing were divided into a control group and a study group.The control group(60 cases)received traditional telephone follow-up for continuity of care,while the study group(60 cases)used a visualization mobile terminal-based care model.The incidence of stoma-related complications,caregiver burden scale,and competence scores of children with stoma were compared between the two groups.RESULTS The primary caregiver burden score in the study group(37.22±3.17)was significantly lower than that in the control group(80.00±4.47),and the difference was statistically significant(P<0.05).Additionally,the caregiving ability score of the study group(172.08±3.49)was significantly higher than that of the control group(117.55±4.28;P<0.05).The total incidence of complications in the study group(11.7%,7/60)was significantly lower compared to the control group(33.3%,20/60;χ2=8.086,P=0.004).CONCLUSION The visual mobile terminal-based care model reduces caregiver burden,improves home care ability,lowers the incidence of complications and readmission rates,and supports successful second-stage reduction surgery for children with enterostomies.展开更多
1|Introduction.In Japan,the declining birthrate,aging population,and the growing prevalence of nuclear families present major challenges for informal caregiving.These factors have led to an increase in caregiving amon...1|Introduction.In Japan,the declining birthrate,aging population,and the growing prevalence of nuclear families present major challenges for informal caregiving.These factors have led to an increase in caregiving among older adults,a phenomenon commonly referred to as“RouRou-kaigo”in Japanese.As of 2022,older adults account for 63.5%of informal care households in Japan[1].展开更多
BACKGROUND Family caregivers of cirrhosis patients(CPs)often experience burden,stress,and depression.Investigating whether these conditions improve following the patient undergoing liver transplantation(LT)is crucial,...BACKGROUND Family caregivers of cirrhosis patients(CPs)often experience burden,stress,and depression.Investigating whether these conditions improve following the patient undergoing liver transplantation(LT)is crucial,as it would elucidate the compre-hensive benefits of the procedure and demonstrate the positive impacts not only on the patients but also on their caregivers and society.AIM To compare the levels of burden,stress and depression among family caregivers of cirrhotic and liver transplant patients.METHODS This cross-sectional observational study evaluated caregivers of CPs and LT recipients at a quaternary Brazilian hospital.Instruments included identification cards,interview scripts,the caregiver burden scale Inventory,Lipp’s Stress Symptom Inventory,and the Beck Depression Inventory-Second Edition.Psychometric analyses involved confirmatory factor analysis and calculation of McDonald’s omega and composite reliability.Factor scores were compared with the Mann-Whitney U test,with effect size as the rank-biserial correlation coefficient(r).Statistical analysis was performed with R software(P<0.05).RESULTS Seventy-seven CP caregivers and 65 LT recipient caregivers were included.Most were female(CP:85.7%vs LT:84.6%)and the patients’spouses(76.6%vs 63.1%).The median age and caregiving duration were 55.4(23.3-76.3)vs 54.6(25.7-82.1)and 3.9(1-20)vs 8(1.5-24)years,respectively(P=0.001).LT caregivers were less likely to be at risk of overload(21.5%vs 49.4%),to be under stress(33.8%vs 36.4%)and to show symptoms of depression(15.4%vs 35.1%).Compared with LT caregivers,CP caregivers had greater median factor scores for burden(general tension,P=0.012;isolation,P=0.014;disappointment,P=0.004),depression(P=0.008),and stress(P=0.047),with small to moderate effect sizes.The disappointment(r=0.240)and depression(r=0.225)dimensions had the largest effect sizes.CONCLUSION Family caregivers of LT recipients are less likely to exhibit symptoms of burden,stress,and depression,suggesting that the benefits of LT extend to the patients’family members.展开更多
Caregivers play an essential but often unacknowledged role in healthcare,particularly in chronic illness and post-transplantation scenarios.We highlight the profound emotional,physical,and logistical challenges caregi...Caregivers play an essential but often unacknowledged role in healthcare,particularly in chronic illness and post-transplantation scenarios.We highlight the profound emotional,physical,and logistical challenges caregivers face,as illuminated by recent studies,including the work of Virches et al about liver transplantation.Pre-transplant caregiving is marked by heightened stress,depression,and emotional strain,as caregivers navigate the unpredictability of conditions like cirrhosis.While liver transplantation significantly alleviates caregiver burden by stabilizing patient health,caregiving evolves rather than ends,requiring ongoing vigilance for post-transplant care,medication adherence,and lifestyle adjustments.We examine the disproportionate impact of caregiving on the family,due to entrenched cultural and gender norms and highlight how these disparities reinforce systemic neglect.Caregiving,often viewed as a familial duty,carries financial,mental,and physical health costs,perpetuating inequities and marginalization.We argue that caregivers are integral to healthcare outcomes and must be included in systemic frameworks to improve patient care.We also advocate for a paradigm shift from patient-centered to family-centered care,emphasizing caregiver inclusion as a core healthcare priority.Policy recommendations related to financial support,respite care,education,and mental health services should be tailored for caregivers.By addressing caregiver needs,healthcare systems can improve patient outcomes,reduce costs,and foster equity.This editorial underscores that caregivers are not ancillary but central to healthcare’s success.Recognizing and supporting them is both an ethical responsibility and a practical necessity for sustainable healthcare.展开更多
Objective:A stroke with the consequence of permanent disability leaves the sufferer dependent on the family to fulfil basic needs.Palliative care is essential for patients and their families,as caregivers,to optimize ...Objective:A stroke with the consequence of permanent disability leaves the sufferer dependent on the family to fulfil basic needs.Palliative care is essential for patients and their families,as caregivers,to optimize the care process and quality of life.Therefore,it is crucial to identify palliative needs for families during care.Palliative care is still limited in Indonesia.This study aimed to explore the palliative care needs of families caring for stroke patients in a home care setting in Indonesia.Methods:This qualitative study employed a descriptive phenomenological approach and was conducted between October and November 2023 through in-depth interviews.Interviews were conducted with 10 family caregivers of stroke patients selected through purposive sampling.Interviews were also conducted with the doctor provider of homecare service as triangulation participants.The Colaizzi method was used for data analysis.Results:Palliative care needs of family caregivers classified into five themes:(1)family perception of palliative care,(2)informational needs,(3)financial needs,(4)family members as primary care support,and(5)end of life care needs.Conclusions:This study identified caregivers’palliative needs during patient care.The extended family and children are main care support in palliative care for family caregiver.This finding suggests that nurses should provide informational support by educating and collaborating with them regarding the provision of palliative care at home.展开更多
Objective:Understand the level of anxiety and depression of PD caregivers,and pay attention to the relationship between mental health and different genders.Methods:200 PD patients and their caregivers were recruited.T...Objective:Understand the level of anxiety and depression of PD caregivers,and pay attention to the relationship between mental health and different genders.Methods:200 PD patients and their caregivers were recruited.The Hamilton Anxiety Scale(HAMA)and the 17-item Hamilton Depression Scale(HAMD)were used to assess the anxiety and depression of the patients;The Mental Component Summary scale(MCS)of the SF-36 was used to test the mental health status of PD caregivers.Results:The PD caregivers HAMA detection of anxiety was 59 cases(29.5%),including 44 female caregivers and 15 males anxious;the PD caregivers HAMD detection of depression was 96 cases(48.0%),including 66 female caregivers and 30 male caregivers;the MCS score of PD male caregivers was 47(42.75-52.25),and the MCS score of PD female caregivers was 41(39-48).There were statistically significant differences in anxiety,depression and mental health scores among caregivers of different genders(p<0.05).Conclusion:The anxiety,depression and mental health of PD female caregivers were worse than male caregivers.Clinical and social work need to pay more attention to the caregivers with mental health.展开更多
Objective:To investigate the dynamic trajectory,predictors,and underlying adaptation mechanisms of family resilience(FR)among Chinese families with preterm infants(PIs)from birth to six months.Methods:Guided by Ecolog...Objective:To investigate the dynamic trajectory,predictors,and underlying adaptation mechanisms of family resilience(FR)among Chinese families with preterm infants(PIs)from birth to six months.Methods:Guided by Ecological Systems Theory,a convergent parallel mixed-methods study was conducted in the Neonatal Intensive Care Unit(NICU)of a tertiary hospital in Fujian Province,China,from June 2023 to June 2024.Quantitative data were collected from 202 caregivers selected by convenience sampling at four time points:at birth(T0),42 days postpartum(T1),3 months postpartum(T2),and 6 months postpartum(T3).Generalized Estimating Equations(GEE)was used to analyze scale score differences across time points and explore factors influencing FR.Qualitative data were collected through semi-structured interviews with 14 caregivers recruited by maximum variation purposive sampling and analyzed using Colaizzi’s phenomenological approach.After conducting separate data analyses,the findings were integrated through side-by-side comparison and joint display.Results:Quantitative results revealed a non-linear,“V”-shaped trajectory of FR,significantly influenced by educational level,conception via assisted reproduction,farming occupation,coping style,psychological resilience,family functioning,and social support.Qualitative findings identified four themes:initial uncertainty and emotional distress,post-discharge anxiety,gradual adaptation,and eventual stabilization.Integrated mixed-methods findings revealed that the initial confusion phase demands a comprehensive response to family needs(T0);the post-discharge bottleneck requires addressing the care capability-needs gap(T1);the role adaptation phase is pivotal for enhancing internal family resources(T2);and the family-work transition necessitates enhanced work-family facilitation(T3).Conclusions:This study systematically identifies the unique“V”-shaped trajectory of FR in Chinese families with PIs and its key influencing factors,and accurately analyzes their dynamic experiences and adaptation across four stages.These findings provide an empirical basis for stage-specific targeted interventions,strongly support the practical advancement of the family-centered care model,and deliver critical guidance for enhancing FR.展开更多
Objective Strok survivors require long-term care,placing significant burdens on family caregivers.This study explored the relationship between sense of coherence,social support and caregiver burden of caregivers of st...Objective Strok survivors require long-term care,placing significant burdens on family caregivers.This study explored the relationship between sense of coherence,social support and caregiver burden of caregivers of stroke survivors.Method This study was conducted in Panyu Community,Guangzhou City,China.And 214 caregivers of stroke survivors were surveyed through four questionnaires,including the general information questionnaires,the Sense of Coherence Scale-13,the Social Support Rating Scale,and the Zaria Caregiver Burden Interview Questionnaire.Result The study found that the social support of family caregivers of stroke patients was significantly negatively correlated with the burden of care,and the sense of coherence was significantly negatively correlated with the burden of care.Conclusion Caregiver burden was prevalent among family caregivers of stroke survivors,and social support and sense of coherence were important predictors of caregiver burden,so in the future,a comprehensive assessment can be made based on the individual characteristics of the stroke survivor and family caregiver to formulate a tailor-made care plan and to reduce the caregivers'burden.展开更多
Background Raising a child with attention deficit hyperactivity disorder(ADHD)is a key challenge for the primary caregiver.This systematic review aims to identify major burdens facing the primary caregiver of a child ...Background Raising a child with attention deficit hyperactivity disorder(ADHD)is a key challenge for the primary caregiver.This systematic review aims to identify major burdens facing the primary caregiver of a child with ADHD.Methods The electronic databases CINAHL,PubMed,and Google Scholar were searched for studies published in English from 2017 to 2022 assessing the challenges facing caregivers of a child with ADHD.The Johns Hopkins Nursing Evidence-Based Practice Model was used to assess quality and risk of bias of studies identified for inclusion.Articles were synthesized by evaluating principal themes of burden to caregivers,stress of caregivers,and effectiveness of intervention programs.Results Eleven articles were included in this review and included a total of 2426 participants.Findings revealed that caregivers of children with ADHD have a poor quality of life and high stress levels.Supportive parenting programs can be effective for improved coping and adaptation mechanisms with children with ADHD.However,few interventional studies were identified,increasing potential for bias.No meta-analysis was conducted.Conclusion Caregivers of children with ADHD can benefit from strategies to improve their quality of life and reduce their stress levels.Targeted parenting programs can make a positive difference in the well-being of caregivers and children with ADHD.Additional research is needed to address the evidence-based effectiveness of parenting support programs.展开更多
Objective: To analyze the impact of the Knowledge-Attitude-Practice (KAP) health education model on the coping ability of caregivers of children with febrile seizures. Methods: A total of 60 caregivers of children wit...Objective: To analyze the impact of the Knowledge-Attitude-Practice (KAP) health education model on the coping ability of caregivers of children with febrile seizures. Methods: A total of 60 caregivers of children with febrile seizures admitted to our hospital from May 2024 to April 2025 were selected and randomly divided into a control group (receiving conventional health education) and a research group (receiving the KAP health education model). The health knowledge mastery, coping ability, anxiety levels, recurrence rates of the children, and caregiver satisfaction were compared between the two groups. Results: The research group demonstrated higher scores in health knowledge mastery and coping ability, lower scores in anxiety and depression, a lower recurrence rate of febrile seizures in children, and higher caregiver satisfaction compared to the control group (p < 0.05). Conclusion: The KAP health education model can effectively enhance the coping ability of caregivers of children with febrile seizures, alleviate their anxiety, reduce the recurrence rate of febrile seizures in children, and improve caregiver satisfaction. It is worthy of clinical promotion and application.展开更多
Against the backdrop of the accelerated aging of the population,the elderly care model integrating medical and elderly care services has become a crucial approach to addressing the challenges of elderly care.As direct...Against the backdrop of the accelerated aging of the population,the elderly care model integrating medical and elderly care services has become a crucial approach to addressing the challenges of elderly care.As direct providers of integrated medical and elderly care services,the professional competence of elderly caregivers directly affects the quality of services and the quality of life of the elderly.This paper aims to conduct an in-depth study on the professional competence of elderly caregivers under the integrated medical and elderly care model.Firstly,it clarifies the components of elderly caregivers’professional competence,analyzes the existing problems in their current professional competence,and proposes targeted improvement strategies.The purpose is to build a high-quality and professional team of elderly caregivers,provide strong support for the development of the integrated medical and elderly care cause,and promote the professionalization of integrated medical and elderly care services.展开更多
With China’s rapidly aging population and the growing preference for aging in place,digital monitoring technologies have emerged as potential tools to support older adults in managing their activities of daily living...With China’s rapidly aging population and the growing preference for aging in place,digital monitoring technologies have emerged as potential tools to support older adults in managing their activities of daily living(ADLs).This study explores the perceptions and acceptance of these technologies among elderly individuals living alone and their informal caregivers(ICs)in Nanshan District,Shenzhen.Grounded in the Unified Theory of Acceptance and Use of Technology(UTAUT),the study employed semi-structured and photo-elicitation interviews to analyze how performance expectancy,effort expectancy,social influence,and facilitating conditions shape technology adoption.The findings reveal clear intergenerational differences:caregivers show higher acceptance and a better understanding of the benefits and functionalities of wearable and environmental monitoring devices,while older adults often express skepticism due to concerns over privacy,usability,and cost.Many elderly participants also cite discomfort,technical complexity,and lack of training as barriers to adoption.Despite these obstacles,both groups acknowledge the potential safety and health benefits of such technologies.The study highlights the need for privacy-by-design features,customized user interfaces,and enhanced digital literacy programs tailored to both elderly users and their caregivers.The research contributes to a sociotechnical understanding of aging-in-place technologies in China and provides actionable insights for developers,policymakers,and healthcare practitioners aiming to enhance home-based elder care.展开更多
Objective:The institutionalization of care for patients with dementia is becoming a trend.Understanding the burden on employed caregivers and exploring associated factors are of great importance in practice.Therefore,...Objective:The institutionalization of care for patients with dementia is becoming a trend.Understanding the burden on employed caregivers and exploring associated factors are of great importance in practice.Therefore,this study aimed to examine the relationship between basic attributes,caring ability,and caregiver burden in employed caregivers practicing in nursing homes.Methods:This cross-sectional study included 541 employed caregivers in 11 four-star nursing homes in Zhejiang Province from April to December 2022.Caregiver burden was assessed using the Zarit Burden Interview(ZBI).Demographic characteristics of participants,characteristics of the older patients with dementia,caring characteristics,training in dementia care,and caring abilities were collected for analysis of influencing factors.A hierarchical multiple regression analysis was conducted to explore the factors influencing the burden on employed caregivers in nursing homes.Results:The ZBI score of employed caregivers in nursing homes was 40.42±10.18,representing a moderate caregiver burden.Factors such as age(U=27.82,P<0.001),residence(U=7.89,P<0.001),educational level(H=55.81,P<0.001),self-care of older patients with dementia(H=85.21,P<0.001),daily care hours(H=73.25,P<0.001),number of older people with dementia cared for(H=14.56,P<0.012)and training in dementia care(U=-9.43,P<0.001)were significantly associated with caregiver burden.Caring ability was negatively associated with caregiver burden(r=-0.22,P<0.01).Furthermore,after controlling for demographic characteristics,the characteristics of older people with dementia,caring characteristics,training in dementia care,and caring ability explained 8.5%,5.8%,and 4.8%of the caregiver burden,respectively.Conclusion:The burden of employed caregivers on patients with dementia in nursing homes can be attributed to various factors.We recommend tailored interventions,such as dementia care training and reviewing the number and duration of hours worked to reduce the burden experienced by caregivers.展开更多
As elderly people increasingly come to represent a higher proportion of the world’s population,various forms of dementia are becoming a significant chronic disease burden.The World Health Organization emphasizes deme...As elderly people increasingly come to represent a higher proportion of the world’s population,various forms of dementia are becoming a significant chronic disease burden.The World Health Organization emphasizes dementia care as a public health priority and calls for more support for family caregivers who commonly play a significant,central role in dementia care.Taking care of someone with dementia is a long-term responsibility that can be stressful and may lead to depression among family caregivers.Depression and related behavioral and cognitive changes among caregivers could in turn affect the status and prognosis of the dementia patient.This review article explores depression in dementia caregivers and summarizes proposed mechanisms,associated factors,management and research findings,and proposes future research directions.展开更多
Objective: To investigate the status of caregiver burden and influencing factors among family caregivers in maintenance hemodialysis (MHD) patients under the background of coronavirus disease 2019, and to provide refe...Objective: To investigate the status of caregiver burden and influencing factors among family caregivers in maintenance hemodialysis (MHD) patients under the background of coronavirus disease 2019, and to provide references for nursing intervention. Methods: From May to August 2020, 237 convenient samples were recruited from the Hemodialysis Centers of The Renmin Hospital of Wuhan University and Zhongnan Hospital of Wuhan University. Questionnaires were conducted with the General Information Questionnaire, Zarit Burden Interview (ZBI), Sense of Coherence-13 (SOC-13) and Perceived Social Support Scale (PSSS). Multiple linear regression was used to analyze the influencing factors of caregiver burden. Results: The score of ZBI among the caregivers was (36.05 ± 14.09). The ZBI of family caregivers was negatively correlated with SOC-13 and PSSS (P < 0.01). Multiple regression results showed that professional status of MHD patients, activity of MHD patients, comprehensibility, manageability and other support were the main influencing factors of their caregiver burden (P < 0.01), which explained 44.4% of the variance. Conclusion: The caregiver burden among family caregivers of MHD patients was above average under the background of COVID-19, which indicated that they felt more burden in the process of caring. Medical staff could give targeted support and guidance in combination with their influencing factors to reduce their caregiver burden further.展开更多
Based on prior research, we hypothesized that staff in an outpatient clinic caring for an HIV patient population might rely on religious and spiritual frameworks to cope with the strains of their work and that their r...Based on prior research, we hypothesized that staff in an outpatient clinic caring for an HIV patient population might rely on religious and spiritual frameworks to cope with the strains of their work and that their responses to a spiritual and religious survey might reflect work-related spiritual distress. Surveys were completed by 78.7% of staff (n = 59). All respondents scored in the "moderate"range for religious and spiritual well-being as well as existential satisfaction with living. The large majority agreed that the religious and spiritual concerns of patients have a place in patient care. Nurses, (88.2% of nurse respondents) viewed assessing the spiritual needs of patients as their responsibility, (p = 0.03). While 82% of HIV clinic respondents privately prayed for patients always, often or sometimes, this did not include physicians. Physicians in this clinic setting appeared to be less spiritual and religious, based on their survey responses, than coworkers and than US physicians in general. The majority of clinic physicians (78%) believed that God does not suffer with the suffering patients, in contrast to the majority of support staff (69%) and nearly half of the nurses, who believed that God does suffer with them, (p = 0.018). Contrary to our expectation, respondents did not report work-related spiritual distress, which may be related to improved therapies that can prolong and improve patients’ lives. Survey data revealed, however, a surprising level of engagement in and reliance on spiritual and religious frameworks among nurses and support staff. Whether the absence of measured spiritual distress is linked, in a causal rather than random manner, to spiritual and religious reliance by certain of these health care providers, is unknown.展开更多
Purpose: This study examined the level of burden and the extent of support on family caregivers of people living with AIDS (PLWHA) in Calabar, South East Nigeria. Methods: A mixed method with cross sectional approach ...Purpose: This study examined the level of burden and the extent of support on family caregivers of people living with AIDS (PLWHA) in Calabar, South East Nigeria. Methods: A mixed method with cross sectional approach was used. Purposive sampling technique guided the recruitment process and data collection methods included, semi-structured questionnaires and focusing group discussion. 260 respondents participated in the study. The quantitative data were mined with the aid of SPSS and the qualitative data were analysed with the aid of NVivo8 using thematic analysis. Results: Results indicated high level of burden with limited support to caregivers. A Chi-square value of 25.1 was obtained at P < 0.05, suggesting a significant relationship between availability of support and caregivers burden. This relationship was supported by the themes of physical, social, emotional and financial burden for the caregivers. Similarly, information on coping skills, emotional support, financial assistance and help with caregiving themes emerged for social support. Conclusion: In Nigeria, the burden of caring for HIV/AIDS patients has a remarkable impact on family caregivers. This calls for the development of policies that can systematically address the needs of family caregivers in order to ameliorate the negative consequences of caregiving for PLWHA.展开更多
Objective:Caregiver burden is used frequently within the nursing literature.It has not yet been clearly defined as there are different opinions regarding this concept.The purpose of this paper is to provide clarity su...Objective:Caregiver burden is used frequently within the nursing literature.It has not yet been clearly defined as there are different opinions regarding this concept.The purpose of this paper is to provide clarity surrounding the concept caregiver burden.Methods:An electronic search of MEDLINE,CINAHL,Health Source Nursing/Academic Edition and Academic Search Complete(ASC)of EBSCO,China National Knowledge Infrastructure(CNKI)and Google Scholar were searched with a limit of 10 years and published in the English or Chinese language.The paper adopted the framework by Walker and Avant.The attributes,antecedents,consequences and uses of the concept were identified.Results:At total of 33 articles were included.The three attributes of caregiver burden were identified as self-perception,multifaceted strain,and over time.The antecedents included insufficient financial resources,multiple responsibility conflict,lack of social activities.The consequences of caregiver burden resulted in negative change which included decreased care provision,decrease in quality of life,physical and psychological health deterioration.Conclusion:A definition of caregiver burden was developed.Tools to measure caregiver burden were identified.The findings from this analysis can be used in nursing practice,nursing education,research and administration.展开更多
Objective:It is aimed to investigate the nursing competence and corresponding influence factors of dementia caregivers in long-term care institutions of Tianjin and identify the training needs of caregivers.Methods:In...Objective:It is aimed to investigate the nursing competence and corresponding influence factors of dementia caregivers in long-term care institutions of Tianjin and identify the training needs of caregivers.Methods:In the cross-section survey of this study,246 dementia caregivers were selected from 6 long-term care institutions in Tianjin as objects of study through convenient sampling.Results:The scores for nursing competence of dementia caregivers were 140.28±7.73,at a moderate level.Study findings that nursing competence of dementia caregivers were positively associated with the work experience(β=0.115,P=0.005),educational level(β=0.333,P<0.01),pervdceived health status(β=0.108,P=0.003)and training times within 1 year(β=0.371,P<0.01).Through the analysis,it is found that the training needs of dementia caregivers are inconsistent with the current situation in terms of content,methods and teachers.There are some problems in the training,such as unreasonable time,single mode and not deepening the understanding of the elderly with dementia.Conclusion:Long term care institutions shall arrange training no less than 12 times a year and evaluate training needs regularly to improve training effect.Providing online and offline training and adding more specialized contents like case analysis,employing experts in the field of dementia to teach courses.展开更多
Purpose:The family caregiver's role is an important influence factor of patient's adaptation behaviour and quality of life after stroke.The purpose of this research was to identify the effect of caregiver empo...Purpose:The family caregiver's role is an important influence factor of patient's adaptation behaviour and quality of life after stroke.The purpose of this research was to identify the effect of caregiver empowerment program based on the adaptation model(CEP-BAM)on functional capacity and quality of life of patients after stroke.Methods:This research was a quasi-experimental research with a pre-and post-test control group design.The total participants who completed the research were 80 patients and their families,40 participants in the intervention group and 40 participants in the control group.We conducted home visits to perform the intervention.The measurement of functional capacity and quality of life performed four times(pre-test and three times post-test).Data analysis was performed using the repeated measurement ANOVA or general linear model repeated measure(GLM-RM).Results:This research proves a significant difference in functional capacity and quality of life between the two groups and between pre-test and sixth months after intervention(P<0.05).The quality of life of the intervention group in the sixth month after intervention was better than that of the control group(33.40±3.65 vs 30.60±2.78)with a significant difference(P<0.05).Conclusion:It is concluded that CEP-BAM effectively increased patients'functional capacity and quality of life after a stroke in the sixth month after intervention.展开更多
基金Supported by Project of the Health Bureau of the Logistics and Security Department of the Central Military Commission,No.145BHQ090003076XMilitary Family Planning Special Fund,No.21JSZ18.
文摘BACKGROUND Children with critical acute abdominal conditions often undergo intestinal stoma surgery.AIM To explore the impact of a visual mobile terminal-based extended care model on caregiver competence for children with enterostomies.METHODS One hundred twenty children with enterostomies and their caregivers in a children's hospital in Beijing were divided into a control group and a study group.The control group(60 cases)received traditional telephone follow-up for continuity of care,while the study group(60 cases)used a visualization mobile terminal-based care model.The incidence of stoma-related complications,caregiver burden scale,and competence scores of children with stoma were compared between the two groups.RESULTS The primary caregiver burden score in the study group(37.22±3.17)was significantly lower than that in the control group(80.00±4.47),and the difference was statistically significant(P<0.05).Additionally,the caregiving ability score of the study group(172.08±3.49)was significantly higher than that of the control group(117.55±4.28;P<0.05).The total incidence of complications in the study group(11.7%,7/60)was significantly lower compared to the control group(33.3%,20/60;χ2=8.086,P=0.004).CONCLUSION The visual mobile terminal-based care model reduces caregiver burden,improves home care ability,lowers the incidence of complications and readmission rates,and supports successful second-stage reduction surgery for children with enterostomies.
文摘1|Introduction.In Japan,the declining birthrate,aging population,and the growing prevalence of nuclear families present major challenges for informal caregiving.These factors have led to an increase in caregiving among older adults,a phenomenon commonly referred to as“RouRou-kaigo”in Japanese.As of 2022,older adults account for 63.5%of informal care households in Japan[1].
文摘BACKGROUND Family caregivers of cirrhosis patients(CPs)often experience burden,stress,and depression.Investigating whether these conditions improve following the patient undergoing liver transplantation(LT)is crucial,as it would elucidate the compre-hensive benefits of the procedure and demonstrate the positive impacts not only on the patients but also on their caregivers and society.AIM To compare the levels of burden,stress and depression among family caregivers of cirrhotic and liver transplant patients.METHODS This cross-sectional observational study evaluated caregivers of CPs and LT recipients at a quaternary Brazilian hospital.Instruments included identification cards,interview scripts,the caregiver burden scale Inventory,Lipp’s Stress Symptom Inventory,and the Beck Depression Inventory-Second Edition.Psychometric analyses involved confirmatory factor analysis and calculation of McDonald’s omega and composite reliability.Factor scores were compared with the Mann-Whitney U test,with effect size as the rank-biserial correlation coefficient(r).Statistical analysis was performed with R software(P<0.05).RESULTS Seventy-seven CP caregivers and 65 LT recipient caregivers were included.Most were female(CP:85.7%vs LT:84.6%)and the patients’spouses(76.6%vs 63.1%).The median age and caregiving duration were 55.4(23.3-76.3)vs 54.6(25.7-82.1)and 3.9(1-20)vs 8(1.5-24)years,respectively(P=0.001).LT caregivers were less likely to be at risk of overload(21.5%vs 49.4%),to be under stress(33.8%vs 36.4%)and to show symptoms of depression(15.4%vs 35.1%).Compared with LT caregivers,CP caregivers had greater median factor scores for burden(general tension,P=0.012;isolation,P=0.014;disappointment,P=0.004),depression(P=0.008),and stress(P=0.047),with small to moderate effect sizes.The disappointment(r=0.240)and depression(r=0.225)dimensions had the largest effect sizes.CONCLUSION Family caregivers of LT recipients are less likely to exhibit symptoms of burden,stress,and depression,suggesting that the benefits of LT extend to the patients’family members.
文摘Caregivers play an essential but often unacknowledged role in healthcare,particularly in chronic illness and post-transplantation scenarios.We highlight the profound emotional,physical,and logistical challenges caregivers face,as illuminated by recent studies,including the work of Virches et al about liver transplantation.Pre-transplant caregiving is marked by heightened stress,depression,and emotional strain,as caregivers navigate the unpredictability of conditions like cirrhosis.While liver transplantation significantly alleviates caregiver burden by stabilizing patient health,caregiving evolves rather than ends,requiring ongoing vigilance for post-transplant care,medication adherence,and lifestyle adjustments.We examine the disproportionate impact of caregiving on the family,due to entrenched cultural and gender norms and highlight how these disparities reinforce systemic neglect.Caregiving,often viewed as a familial duty,carries financial,mental,and physical health costs,perpetuating inequities and marginalization.We argue that caregivers are integral to healthcare outcomes and must be included in systemic frameworks to improve patient care.We also advocate for a paradigm shift from patient-centered to family-centered care,emphasizing caregiver inclusion as a core healthcare priority.Policy recommendations related to financial support,respite care,education,and mental health services should be tailored for caregivers.By addressing caregiver needs,healthcare systems can improve patient outcomes,reduce costs,and foster equity.This editorial underscores that caregivers are not ancillary but central to healthcare’s success.Recognizing and supporting them is both an ethical responsibility and a practical necessity for sustainable healthcare.
文摘Objective:A stroke with the consequence of permanent disability leaves the sufferer dependent on the family to fulfil basic needs.Palliative care is essential for patients and their families,as caregivers,to optimize the care process and quality of life.Therefore,it is crucial to identify palliative needs for families during care.Palliative care is still limited in Indonesia.This study aimed to explore the palliative care needs of families caring for stroke patients in a home care setting in Indonesia.Methods:This qualitative study employed a descriptive phenomenological approach and was conducted between October and November 2023 through in-depth interviews.Interviews were conducted with 10 family caregivers of stroke patients selected through purposive sampling.Interviews were also conducted with the doctor provider of homecare service as triangulation participants.The Colaizzi method was used for data analysis.Results:Palliative care needs of family caregivers classified into five themes:(1)family perception of palliative care,(2)informational needs,(3)financial needs,(4)family members as primary care support,and(5)end of life care needs.Conclusions:This study identified caregivers’palliative needs during patient care.The extended family and children are main care support in palliative care for family caregiver.This finding suggests that nurses should provide informational support by educating and collaborating with them regarding the provision of palliative care at home.
文摘Objective:Understand the level of anxiety and depression of PD caregivers,and pay attention to the relationship between mental health and different genders.Methods:200 PD patients and their caregivers were recruited.The Hamilton Anxiety Scale(HAMA)and the 17-item Hamilton Depression Scale(HAMD)were used to assess the anxiety and depression of the patients;The Mental Component Summary scale(MCS)of the SF-36 was used to test the mental health status of PD caregivers.Results:The PD caregivers HAMA detection of anxiety was 59 cases(29.5%),including 44 female caregivers and 15 males anxious;the PD caregivers HAMD detection of depression was 96 cases(48.0%),including 66 female caregivers and 30 male caregivers;the MCS score of PD male caregivers was 47(42.75-52.25),and the MCS score of PD female caregivers was 41(39-48).There were statistically significant differences in anxiety,depression and mental health scores among caregivers of different genders(p<0.05).Conclusion:The anxiety,depression and mental health of PD female caregivers were worse than male caregivers.Clinical and social work need to pay more attention to the caregivers with mental health.
文摘Objective:To investigate the dynamic trajectory,predictors,and underlying adaptation mechanisms of family resilience(FR)among Chinese families with preterm infants(PIs)from birth to six months.Methods:Guided by Ecological Systems Theory,a convergent parallel mixed-methods study was conducted in the Neonatal Intensive Care Unit(NICU)of a tertiary hospital in Fujian Province,China,from June 2023 to June 2024.Quantitative data were collected from 202 caregivers selected by convenience sampling at four time points:at birth(T0),42 days postpartum(T1),3 months postpartum(T2),and 6 months postpartum(T3).Generalized Estimating Equations(GEE)was used to analyze scale score differences across time points and explore factors influencing FR.Qualitative data were collected through semi-structured interviews with 14 caregivers recruited by maximum variation purposive sampling and analyzed using Colaizzi’s phenomenological approach.After conducting separate data analyses,the findings were integrated through side-by-side comparison and joint display.Results:Quantitative results revealed a non-linear,“V”-shaped trajectory of FR,significantly influenced by educational level,conception via assisted reproduction,farming occupation,coping style,psychological resilience,family functioning,and social support.Qualitative findings identified four themes:initial uncertainty and emotional distress,post-discharge anxiety,gradual adaptation,and eventual stabilization.Integrated mixed-methods findings revealed that the initial confusion phase demands a comprehensive response to family needs(T0);the post-discharge bottleneck requires addressing the care capability-needs gap(T1);the role adaptation phase is pivotal for enhancing internal family resources(T2);and the family-work transition necessitates enhanced work-family facilitation(T3).Conclusions:This study systematically identifies the unique“V”-shaped trajectory of FR in Chinese families with PIs and its key influencing factors,and accurately analyzes their dynamic experiences and adaptation across four stages.These findings provide an empirical basis for stage-specific targeted interventions,strongly support the practical advancement of the family-centered care model,and deliver critical guidance for enhancing FR.
文摘Objective Strok survivors require long-term care,placing significant burdens on family caregivers.This study explored the relationship between sense of coherence,social support and caregiver burden of caregivers of stroke survivors.Method This study was conducted in Panyu Community,Guangzhou City,China.And 214 caregivers of stroke survivors were surveyed through four questionnaires,including the general information questionnaires,the Sense of Coherence Scale-13,the Social Support Rating Scale,and the Zaria Caregiver Burden Interview Questionnaire.Result The study found that the social support of family caregivers of stroke patients was significantly negatively correlated with the burden of care,and the sense of coherence was significantly negatively correlated with the burden of care.Conclusion Caregiver burden was prevalent among family caregivers of stroke survivors,and social support and sense of coherence were important predictors of caregiver burden,so in the future,a comprehensive assessment can be made based on the individual characteristics of the stroke survivor and family caregiver to formulate a tailor-made care plan and to reduce the caregivers'burden.
文摘Background Raising a child with attention deficit hyperactivity disorder(ADHD)is a key challenge for the primary caregiver.This systematic review aims to identify major burdens facing the primary caregiver of a child with ADHD.Methods The electronic databases CINAHL,PubMed,and Google Scholar were searched for studies published in English from 2017 to 2022 assessing the challenges facing caregivers of a child with ADHD.The Johns Hopkins Nursing Evidence-Based Practice Model was used to assess quality and risk of bias of studies identified for inclusion.Articles were synthesized by evaluating principal themes of burden to caregivers,stress of caregivers,and effectiveness of intervention programs.Results Eleven articles were included in this review and included a total of 2426 participants.Findings revealed that caregivers of children with ADHD have a poor quality of life and high stress levels.Supportive parenting programs can be effective for improved coping and adaptation mechanisms with children with ADHD.However,few interventional studies were identified,increasing potential for bias.No meta-analysis was conducted.Conclusion Caregivers of children with ADHD can benefit from strategies to improve their quality of life and reduce their stress levels.Targeted parenting programs can make a positive difference in the well-being of caregivers and children with ADHD.Additional research is needed to address the evidence-based effectiveness of parenting support programs.
基金Scientific research development fund of Kangda College,Nanjing Medical University(Project No.:KD2024KYJJ201)。
文摘Objective: To analyze the impact of the Knowledge-Attitude-Practice (KAP) health education model on the coping ability of caregivers of children with febrile seizures. Methods: A total of 60 caregivers of children with febrile seizures admitted to our hospital from May 2024 to April 2025 were selected and randomly divided into a control group (receiving conventional health education) and a research group (receiving the KAP health education model). The health knowledge mastery, coping ability, anxiety levels, recurrence rates of the children, and caregiver satisfaction were compared between the two groups. Results: The research group demonstrated higher scores in health knowledge mastery and coping ability, lower scores in anxiety and depression, a lower recurrence rate of febrile seizures in children, and higher caregiver satisfaction compared to the control group (p < 0.05). Conclusion: The KAP health education model can effectively enhance the coping ability of caregivers of children with febrile seizures, alleviate their anxiety, reduce the recurrence rate of febrile seizures in children, and improve caregiver satisfaction. It is worthy of clinical promotion and application.
文摘Against the backdrop of the accelerated aging of the population,the elderly care model integrating medical and elderly care services has become a crucial approach to addressing the challenges of elderly care.As direct providers of integrated medical and elderly care services,the professional competence of elderly caregivers directly affects the quality of services and the quality of life of the elderly.This paper aims to conduct an in-depth study on the professional competence of elderly caregivers under the integrated medical and elderly care model.Firstly,it clarifies the components of elderly caregivers’professional competence,analyzes the existing problems in their current professional competence,and proposes targeted improvement strategies.The purpose is to build a high-quality and professional team of elderly caregivers,provide strong support for the development of the integrated medical and elderly care cause,and promote the professionalization of integrated medical and elderly care services.
文摘With China’s rapidly aging population and the growing preference for aging in place,digital monitoring technologies have emerged as potential tools to support older adults in managing their activities of daily living(ADLs).This study explores the perceptions and acceptance of these technologies among elderly individuals living alone and their informal caregivers(ICs)in Nanshan District,Shenzhen.Grounded in the Unified Theory of Acceptance and Use of Technology(UTAUT),the study employed semi-structured and photo-elicitation interviews to analyze how performance expectancy,effort expectancy,social influence,and facilitating conditions shape technology adoption.The findings reveal clear intergenerational differences:caregivers show higher acceptance and a better understanding of the benefits and functionalities of wearable and environmental monitoring devices,while older adults often express skepticism due to concerns over privacy,usability,and cost.Many elderly participants also cite discomfort,technical complexity,and lack of training as barriers to adoption.Despite these obstacles,both groups acknowledge the potential safety and health benefits of such technologies.The study highlights the need for privacy-by-design features,customized user interfaces,and enhanced digital literacy programs tailored to both elderly users and their caregivers.The research contributes to a sociotechnical understanding of aging-in-place technologies in China and provides actionable insights for developers,policymakers,and healthcare practitioners aiming to enhance home-based elder care.
基金supported by the Department of Science and Technology of Zhejiang Province(LGF22H250002)the Health Commission of Zhejiang Province(2024KY002 to L.C.,2024KY617 to L.W.,2022KY004 to J.B.)The views expressed are those of the authors and not necessarily those of the funders.
文摘Objective:The institutionalization of care for patients with dementia is becoming a trend.Understanding the burden on employed caregivers and exploring associated factors are of great importance in practice.Therefore,this study aimed to examine the relationship between basic attributes,caring ability,and caregiver burden in employed caregivers practicing in nursing homes.Methods:This cross-sectional study included 541 employed caregivers in 11 four-star nursing homes in Zhejiang Province from April to December 2022.Caregiver burden was assessed using the Zarit Burden Interview(ZBI).Demographic characteristics of participants,characteristics of the older patients with dementia,caring characteristics,training in dementia care,and caring abilities were collected for analysis of influencing factors.A hierarchical multiple regression analysis was conducted to explore the factors influencing the burden on employed caregivers in nursing homes.Results:The ZBI score of employed caregivers in nursing homes was 40.42±10.18,representing a moderate caregiver burden.Factors such as age(U=27.82,P<0.001),residence(U=7.89,P<0.001),educational level(H=55.81,P<0.001),self-care of older patients with dementia(H=85.21,P<0.001),daily care hours(H=73.25,P<0.001),number of older people with dementia cared for(H=14.56,P<0.012)and training in dementia care(U=-9.43,P<0.001)were significantly associated with caregiver burden.Caring ability was negatively associated with caregiver burden(r=-0.22,P<0.01).Furthermore,after controlling for demographic characteristics,the characteristics of older people with dementia,caring characteristics,training in dementia care,and caring ability explained 8.5%,5.8%,and 4.8%of the caregiver burden,respectively.Conclusion:The burden of employed caregivers on patients with dementia in nursing homes can be attributed to various factors.We recommend tailored interventions,such as dementia care training and reviewing the number and duration of hours worked to reduce the burden experienced by caregivers.
文摘As elderly people increasingly come to represent a higher proportion of the world’s population,various forms of dementia are becoming a significant chronic disease burden.The World Health Organization emphasizes dementia care as a public health priority and calls for more support for family caregivers who commonly play a significant,central role in dementia care.Taking care of someone with dementia is a long-term responsibility that can be stressful and may lead to depression among family caregivers.Depression and related behavioral and cognitive changes among caregivers could in turn affect the status and prognosis of the dementia patient.This review article explores depression in dementia caregivers and summarizes proposed mechanisms,associated factors,management and research findings,and proposes future research directions.
基金This research has received support from Health Commission of Hubei Provincial(No.LHHL2020ZD-02)Renmin Hospital of Wuhan University(No.HL2021ZC-02).
文摘Objective: To investigate the status of caregiver burden and influencing factors among family caregivers in maintenance hemodialysis (MHD) patients under the background of coronavirus disease 2019, and to provide references for nursing intervention. Methods: From May to August 2020, 237 convenient samples were recruited from the Hemodialysis Centers of The Renmin Hospital of Wuhan University and Zhongnan Hospital of Wuhan University. Questionnaires were conducted with the General Information Questionnaire, Zarit Burden Interview (ZBI), Sense of Coherence-13 (SOC-13) and Perceived Social Support Scale (PSSS). Multiple linear regression was used to analyze the influencing factors of caregiver burden. Results: The score of ZBI among the caregivers was (36.05 ± 14.09). The ZBI of family caregivers was negatively correlated with SOC-13 and PSSS (P < 0.01). Multiple regression results showed that professional status of MHD patients, activity of MHD patients, comprehensibility, manageability and other support were the main influencing factors of their caregiver burden (P < 0.01), which explained 44.4% of the variance. Conclusion: The caregiver burden among family caregivers of MHD patients was above average under the background of COVID-19, which indicated that they felt more burden in the process of caring. Medical staff could give targeted support and guidance in combination with their influencing factors to reduce their caregiver burden further.
文摘Based on prior research, we hypothesized that staff in an outpatient clinic caring for an HIV patient population might rely on religious and spiritual frameworks to cope with the strains of their work and that their responses to a spiritual and religious survey might reflect work-related spiritual distress. Surveys were completed by 78.7% of staff (n = 59). All respondents scored in the "moderate"range for religious and spiritual well-being as well as existential satisfaction with living. The large majority agreed that the religious and spiritual concerns of patients have a place in patient care. Nurses, (88.2% of nurse respondents) viewed assessing the spiritual needs of patients as their responsibility, (p = 0.03). While 82% of HIV clinic respondents privately prayed for patients always, often or sometimes, this did not include physicians. Physicians in this clinic setting appeared to be less spiritual and religious, based on their survey responses, than coworkers and than US physicians in general. The majority of clinic physicians (78%) believed that God does not suffer with the suffering patients, in contrast to the majority of support staff (69%) and nearly half of the nurses, who believed that God does suffer with them, (p = 0.018). Contrary to our expectation, respondents did not report work-related spiritual distress, which may be related to improved therapies that can prolong and improve patients’ lives. Survey data revealed, however, a surprising level of engagement in and reliance on spiritual and religious frameworks among nurses and support staff. Whether the absence of measured spiritual distress is linked, in a causal rather than random manner, to spiritual and religious reliance by certain of these health care providers, is unknown.
文摘Purpose: This study examined the level of burden and the extent of support on family caregivers of people living with AIDS (PLWHA) in Calabar, South East Nigeria. Methods: A mixed method with cross sectional approach was used. Purposive sampling technique guided the recruitment process and data collection methods included, semi-structured questionnaires and focusing group discussion. 260 respondents participated in the study. The quantitative data were mined with the aid of SPSS and the qualitative data were analysed with the aid of NVivo8 using thematic analysis. Results: Results indicated high level of burden with limited support to caregivers. A Chi-square value of 25.1 was obtained at P < 0.05, suggesting a significant relationship between availability of support and caregivers burden. This relationship was supported by the themes of physical, social, emotional and financial burden for the caregivers. Similarly, information on coping skills, emotional support, financial assistance and help with caregiving themes emerged for social support. Conclusion: In Nigeria, the burden of caring for HIV/AIDS patients has a remarkable impact on family caregivers. This calls for the development of policies that can systematically address the needs of family caregivers in order to ameliorate the negative consequences of caregiving for PLWHA.
基金The authors acknowledge the support of the librarians at the Institute of Technology Tralee,Co.Kerry,Ireland.
文摘Objective:Caregiver burden is used frequently within the nursing literature.It has not yet been clearly defined as there are different opinions regarding this concept.The purpose of this paper is to provide clarity surrounding the concept caregiver burden.Methods:An electronic search of MEDLINE,CINAHL,Health Source Nursing/Academic Edition and Academic Search Complete(ASC)of EBSCO,China National Knowledge Infrastructure(CNKI)and Google Scholar were searched with a limit of 10 years and published in the English or Chinese language.The paper adopted the framework by Walker and Avant.The attributes,antecedents,consequences and uses of the concept were identified.Results:At total of 33 articles were included.The three attributes of caregiver burden were identified as self-perception,multifaceted strain,and over time.The antecedents included insufficient financial resources,multiple responsibility conflict,lack of social activities.The consequences of caregiver burden resulted in negative change which included decreased care provision,decrease in quality of life,physical and psychological health deterioration.Conclusion:A definition of caregiver burden was developed.Tools to measure caregiver burden were identified.The findings from this analysis can be used in nursing practice,nursing education,research and administration.
文摘Objective:It is aimed to investigate the nursing competence and corresponding influence factors of dementia caregivers in long-term care institutions of Tianjin and identify the training needs of caregivers.Methods:In the cross-section survey of this study,246 dementia caregivers were selected from 6 long-term care institutions in Tianjin as objects of study through convenient sampling.Results:The scores for nursing competence of dementia caregivers were 140.28±7.73,at a moderate level.Study findings that nursing competence of dementia caregivers were positively associated with the work experience(β=0.115,P=0.005),educational level(β=0.333,P<0.01),pervdceived health status(β=0.108,P=0.003)and training times within 1 year(β=0.371,P<0.01).Through the analysis,it is found that the training needs of dementia caregivers are inconsistent with the current situation in terms of content,methods and teachers.There are some problems in the training,such as unreasonable time,single mode and not deepening the understanding of the elderly with dementia.Conclusion:Long term care institutions shall arrange training no less than 12 times a year and evaluate training needs regularly to improve training effect.Providing online and offline training and adding more specialized contents like case analysis,employing experts in the field of dementia to teach courses.
基金This research was supported by the Board for Development and Empowerment Human Resources of Health,the Indonesian Ministry of Health,with the number of decision letter:HK.02.03/Ⅲ.1/004172/2016
文摘Purpose:The family caregiver's role is an important influence factor of patient's adaptation behaviour and quality of life after stroke.The purpose of this research was to identify the effect of caregiver empowerment program based on the adaptation model(CEP-BAM)on functional capacity and quality of life of patients after stroke.Methods:This research was a quasi-experimental research with a pre-and post-test control group design.The total participants who completed the research were 80 patients and their families,40 participants in the intervention group and 40 participants in the control group.We conducted home visits to perform the intervention.The measurement of functional capacity and quality of life performed four times(pre-test and three times post-test).Data analysis was performed using the repeated measurement ANOVA or general linear model repeated measure(GLM-RM).Results:This research proves a significant difference in functional capacity and quality of life between the two groups and between pre-test and sixth months after intervention(P<0.05).The quality of life of the intervention group in the sixth month after intervention was better than that of the control group(33.40±3.65 vs 30.60±2.78)with a significant difference(P<0.05).Conclusion:It is concluded that CEP-BAM effectively increased patients'functional capacity and quality of life after a stroke in the sixth month after intervention.
