目的汉化并检验简版优逝问卷(good death inventory-short form,GDI-SF)在癌症患者丧亲家属群体中的信度、效度。方法通过翻译、整合、回译、专家委员会审核及预调查形成中文版GDI-SF。采用便利抽样法对699名癌症患者丧亲家属进行调查,...目的汉化并检验简版优逝问卷(good death inventory-short form,GDI-SF)在癌症患者丧亲家属群体中的信度、效度。方法通过翻译、整合、回译、专家委员会审核及预调查形成中文版GDI-SF。采用便利抽样法对699名癌症患者丧亲家属进行调查,检验中文版GDI-SF的信度、效度。结果305名癌症患者丧亲家属完成研究。中文版GDI-SF的条目水平内容效度指数、量表水平的平均内容效度均为1.00。探索性因子分析共提取5个公因子,包括专业医疗照护(6个条目)、告别准备(4个条目)、尊严与人生价值(4个条目)、自然死亡与精神支持(2个条目)、身心舒适(2个条目),累计方差解释率为52.176%。中文版GDI-SF的总体Cronbachα系数为0.779,折半信度为0.731。中文版GDI-SF的每个条目得分与其所属维度得分的Pearson相关系数范围为0.591~0.769(P<0.01)。结论中文版GDI-SF具有较好的信度和效度,可从丧亲家属视角快速、有效地评估癌症患者的优逝水平。展开更多
目的:运用Rodgers演化概念分析法深入剖析老年人的优逝期望,以期更好地理解并满足老年人内心的临终关怀意愿,帮助其实现优逝。方法:通过检索中国知网、万方数据库、维普数据库、PubMed、Web of Science等数据库进行文献筛选,分析概念演...目的:运用Rodgers演化概念分析法深入剖析老年人的优逝期望,以期更好地理解并满足老年人内心的临终关怀意愿,帮助其实现优逝。方法:通过检索中国知网、万方数据库、维普数据库、PubMed、Web of Science等数据库进行文献筛选,分析概念演化、替代词和相关术语、前因变量、属性特征、后果以及典型案例。结果:共纳入48篇文献,其中中文文献16篇,英文文献32篇。概念属性包括亲友鼓励陪伴、寻求精神寄托、传扬优良品质、克服消极情感、坦然平静离世5个方面。老年人优逝期望的前因变量包括社会人口学因素、个人因素、文化因素、社会支持因素4个方面,后果主要为优逝期望是否得到满足。结论:明确了老年人优逝期望的概念,为以后开展老年人优逝期望等相关质性研究提供依据和参考,也为老年人优逝期望的测评工具、理论框架的开发提供新的视角和思路。展开更多
Background and Objective The development of modern palliative care in China began in the 1980s and is currently in an accelerating phase.However,inconsistencies in terminology and concepts have hindered policy-making,...Background and Objective The development of modern palliative care in China began in the 1980s and is currently in an accelerating phase.However,inconsistencies in terminology and concepts have hindered policy-making,clinical practice,and academic research.The Terminology of Clinical Medicine(2023 edition)has determined huan-he-yi-liao(缓和医疗)and an-ning-liao-hu(安宁疗护)as the formal terms of"palliative care"and"hospice care",respectively.To align with these terms,this study aims to establish expert consensus definitions tailored to the Chinese context.Methods We systematically retrieved and collected domestic and international literature and policy documents related to the definition of palliative care,then deconstructed and analyzed the relevant conceptual elements of these definitions.Core expert panel built the initial recommended definition upon the conceptual elements and consensus definition of palliative care by the International Association for Hospice and Palliative Care(IAHPC)through two rounds of online discussions.After nomination and selection,61 professionals in the field of palliative care in China were invited to participate in the consensus expert group.Two rounds of Delphi consultation were conducted among the consensus experts,who were asked to score their agreement using Likert scale to the items in the initial recommended definition and the definition statements of palliative care and hospice care.Agreement rate of over 80%was considered as reaching consensus for each items.The core expert panel revised the items and the statements of recommended definitions based on the results from Delphi surveys.The final recommended definitions were formulated after feedback from patient and public involvement(PPI)group members.Results The response rates for the first and second round of Delphi surveys were 83.6%and 100.0%,respectively.The agreement rates of the items and statements of the recommended definitions exceeded 90%.Accordingly,the definitions based on Chinese expert consensus are recommended.Palliative care is an active holistic approach aimed at patients of all ages suffering from life-threatening illness and their families and caregivers.It seeks to improve their quality of life by preventing,assessing,and relieving physical,psychological,social,and spiritual suffering.Hospice care is an integral part of palliative care,focusing on holistic care for patients at the end of life and their families and caregivers.Its goal is to help patients to maintain dignity and achieve a good death by alleviating physical,psychological,social,and spiritual distress without intentionally hastening or postponing death,meanwhile improve the quality of life for families and caregivers.Conclusions This study has established the Chinese expert consensus definitions of palliative care and hospice care in China,as well as the relationship between the two.The definitions highlight the holistic nature of palliative care,providing a foundation for discipline development,clinical practice,and public communication.展开更多
目的探讨家庭叙事疗法对晚期癌症安宁疗护患者生命意义及自我感受负担的影响。方法选取2023年3-10月晚期肿瘤安宁疗护患者及其家庭照顾者56对作为研究对象,随机分为对照组和试验组,每组28对。对照组采用常规心理护理,试验组在对照组的...目的探讨家庭叙事疗法对晚期癌症安宁疗护患者生命意义及自我感受负担的影响。方法选取2023年3-10月晚期肿瘤安宁疗护患者及其家庭照顾者56对作为研究对象,随机分为对照组和试验组,每组28对。对照组采用常规心理护理,试验组在对照组的基础上采用家庭叙事疗法。两组干预前后分别采用医学应对问卷(Medical Coping Mode Questionnaire,MCMQ)、生命意义感量表(Meaning in Life Questionnaire,MLQ)和自我感受负担量表(Self-perceived Burden Scale,SPBS)进行评分,通过SPSS两独立样本t检验进行得分比较评价干预效果。结果干预前,试验组和对照组的医学应对问卷、生命意义感量表和自我感受负担量表得分比较差异均无统计学意义(P>0.05);干预后,试验组面对维度高于对照组,屈服维度低于对照组,试验组生命意义感量表各维度得分高于对照组,自我感受负担量表评分低于对照组,组间比较差异均具有统计学意义(P<0.05)。结论家庭叙事疗法有助于改善晚期癌症安宁疗护患者的应对方式,提高患者的生命意义感,减轻自我感受负担,值得临床推广应用。展开更多
文摘目的汉化并检验简版优逝问卷(good death inventory-short form,GDI-SF)在癌症患者丧亲家属群体中的信度、效度。方法通过翻译、整合、回译、专家委员会审核及预调查形成中文版GDI-SF。采用便利抽样法对699名癌症患者丧亲家属进行调查,检验中文版GDI-SF的信度、效度。结果305名癌症患者丧亲家属完成研究。中文版GDI-SF的条目水平内容效度指数、量表水平的平均内容效度均为1.00。探索性因子分析共提取5个公因子,包括专业医疗照护(6个条目)、告别准备(4个条目)、尊严与人生价值(4个条目)、自然死亡与精神支持(2个条目)、身心舒适(2个条目),累计方差解释率为52.176%。中文版GDI-SF的总体Cronbachα系数为0.779,折半信度为0.731。中文版GDI-SF的每个条目得分与其所属维度得分的Pearson相关系数范围为0.591~0.769(P<0.01)。结论中文版GDI-SF具有较好的信度和效度,可从丧亲家属视角快速、有效地评估癌症患者的优逝水平。
文摘目的:运用Rodgers演化概念分析法深入剖析老年人的优逝期望,以期更好地理解并满足老年人内心的临终关怀意愿,帮助其实现优逝。方法:通过检索中国知网、万方数据库、维普数据库、PubMed、Web of Science等数据库进行文献筛选,分析概念演化、替代词和相关术语、前因变量、属性特征、后果以及典型案例。结果:共纳入48篇文献,其中中文文献16篇,英文文献32篇。概念属性包括亲友鼓励陪伴、寻求精神寄托、传扬优良品质、克服消极情感、坦然平静离世5个方面。老年人优逝期望的前因变量包括社会人口学因素、个人因素、文化因素、社会支持因素4个方面,后果主要为优逝期望是否得到满足。结论:明确了老年人优逝期望的概念,为以后开展老年人优逝期望等相关质性研究提供依据和参考,也为老年人优逝期望的测评工具、理论框架的开发提供新的视角和思路。
文摘Background and Objective The development of modern palliative care in China began in the 1980s and is currently in an accelerating phase.However,inconsistencies in terminology and concepts have hindered policy-making,clinical practice,and academic research.The Terminology of Clinical Medicine(2023 edition)has determined huan-he-yi-liao(缓和医疗)and an-ning-liao-hu(安宁疗护)as the formal terms of"palliative care"and"hospice care",respectively.To align with these terms,this study aims to establish expert consensus definitions tailored to the Chinese context.Methods We systematically retrieved and collected domestic and international literature and policy documents related to the definition of palliative care,then deconstructed and analyzed the relevant conceptual elements of these definitions.Core expert panel built the initial recommended definition upon the conceptual elements and consensus definition of palliative care by the International Association for Hospice and Palliative Care(IAHPC)through two rounds of online discussions.After nomination and selection,61 professionals in the field of palliative care in China were invited to participate in the consensus expert group.Two rounds of Delphi consultation were conducted among the consensus experts,who were asked to score their agreement using Likert scale to the items in the initial recommended definition and the definition statements of palliative care and hospice care.Agreement rate of over 80%was considered as reaching consensus for each items.The core expert panel revised the items and the statements of recommended definitions based on the results from Delphi surveys.The final recommended definitions were formulated after feedback from patient and public involvement(PPI)group members.Results The response rates for the first and second round of Delphi surveys were 83.6%and 100.0%,respectively.The agreement rates of the items and statements of the recommended definitions exceeded 90%.Accordingly,the definitions based on Chinese expert consensus are recommended.Palliative care is an active holistic approach aimed at patients of all ages suffering from life-threatening illness and their families and caregivers.It seeks to improve their quality of life by preventing,assessing,and relieving physical,psychological,social,and spiritual suffering.Hospice care is an integral part of palliative care,focusing on holistic care for patients at the end of life and their families and caregivers.Its goal is to help patients to maintain dignity and achieve a good death by alleviating physical,psychological,social,and spiritual distress without intentionally hastening or postponing death,meanwhile improve the quality of life for families and caregivers.Conclusions This study has established the Chinese expert consensus definitions of palliative care and hospice care in China,as well as the relationship between the two.The definitions highlight the holistic nature of palliative care,providing a foundation for discipline development,clinical practice,and public communication.
文摘目的探讨家庭叙事疗法对晚期癌症安宁疗护患者生命意义及自我感受负担的影响。方法选取2023年3-10月晚期肿瘤安宁疗护患者及其家庭照顾者56对作为研究对象,随机分为对照组和试验组,每组28对。对照组采用常规心理护理,试验组在对照组的基础上采用家庭叙事疗法。两组干预前后分别采用医学应对问卷(Medical Coping Mode Questionnaire,MCMQ)、生命意义感量表(Meaning in Life Questionnaire,MLQ)和自我感受负担量表(Self-perceived Burden Scale,SPBS)进行评分,通过SPSS两独立样本t检验进行得分比较评价干预效果。结果干预前,试验组和对照组的医学应对问卷、生命意义感量表和自我感受负担量表得分比较差异均无统计学意义(P>0.05);干预后,试验组面对维度高于对照组,屈服维度低于对照组,试验组生命意义感量表各维度得分高于对照组,自我感受负担量表评分低于对照组,组间比较差异均具有统计学意义(P<0.05)。结论家庭叙事疗法有助于改善晚期癌症安宁疗护患者的应对方式,提高患者的生命意义感,减轻自我感受负担,值得临床推广应用。
