The rapid developments of science and technology in China over recent decades, particularly in biomedical research, have brought forward serious challenges regarding ethical governance. Recently, Jian-kui HE, a Chines...The rapid developments of science and technology in China over recent decades, particularly in biomedical research, have brought forward serious challenges regarding ethical governance. Recently, Jian-kui HE, a Chinese scientist, claimed to have "created" the first gene-edited babies, designed to be naturally immune to the human immunodeficiency virus(HIV). The news immediately triggered widespread criticism, denouncement, and debate over the scientific and ethical legitimacy of HE’s genetic experiments. China’s guidelines and regulations have banned germline genome editing on human embryos for clinical use because of scientific and ethical concerns, in accordance with the international consensus. HE’s human experimentation has not only violated these Chinese regulations, but also breached other ethical and regulatory norms. These include questionable scientific value, unreasonable risk-benefit ratio, illegitimate ethics review, invalid informed consent, and regulatory misconduct. This series of ethical failings of HE and his team reveal the institutional failure of the current ethics governance system which largely depends on scientist’s self-regulation. The incident highlights the need for urgent improvement of ethics governance at all levels, the enforcement of technical and ethical guidelines, and the establishment of laws relating to such bioethical issues.展开更多
《成为罪人：一个巴布亚新几内亚社会中的基督教与道德困扰》（Becoming Sinners：Christianity and Moral Torment in a Papua New Guinea Society）（Robbins,Joel,2004）是西方社会科学界新近出现的“基督教民族志”中较为突出的一本...《成为罪人：一个巴布亚新几内亚社会中的基督教与道德困扰》（Becoming Sinners：Christianity and Moral Torment in a Papua New Guinea Society）（Robbins,Joel,2004）是西方社会科学界新近出现的“基督教民族志”中较为突出的一本.巴布亚新几内亚,本是人类学田野研究的“圣地”,从巴特（FredrikBarth）开始,先后有数位学者围绕着仪式、生态.展开更多
基金Project supported by the National Natural Science Foundation of China(No.L1824000)
文摘The rapid developments of science and technology in China over recent decades, particularly in biomedical research, have brought forward serious challenges regarding ethical governance. Recently, Jian-kui HE, a Chinese scientist, claimed to have "created" the first gene-edited babies, designed to be naturally immune to the human immunodeficiency virus(HIV). The news immediately triggered widespread criticism, denouncement, and debate over the scientific and ethical legitimacy of HE’s genetic experiments. China’s guidelines and regulations have banned germline genome editing on human embryos for clinical use because of scientific and ethical concerns, in accordance with the international consensus. HE’s human experimentation has not only violated these Chinese regulations, but also breached other ethical and regulatory norms. These include questionable scientific value, unreasonable risk-benefit ratio, illegitimate ethics review, invalid informed consent, and regulatory misconduct. This series of ethical failings of HE and his team reveal the institutional failure of the current ethics governance system which largely depends on scientist’s self-regulation. The incident highlights the need for urgent improvement of ethics governance at all levels, the enforcement of technical and ethical guidelines, and the establishment of laws relating to such bioethical issues.
文摘《成为罪人：一个巴布亚新几内亚社会中的基督教与道德困扰》（Becoming Sinners：Christianity and Moral Torment in a Papua New Guinea Society）（Robbins,Joel,2004）是西方社会科学界新近出现的“基督教民族志”中较为突出的一本.巴布亚新几内亚,本是人类学田野研究的“圣地”,从巴特（FredrikBarth）开始,先后有数位学者围绕着仪式、生态.
